MONDAY'S RANT~

[selmaS]

Rainy days and Mondays always get me down".....so lets rant all day Monday- each Monday a different topic-we will poll for next weeks.....!!
Idea's for rants...ur NS, ur NL, ur PCP, ur meds, family and friends...the list is endless......

                                                            ........ post ur rant and get it out of ur system and enjoy the rest of the week!!

[Red6967]

Do you have any experience wtih Dr. Boggan?

[selmaS]

Well, I am happy and sad this week...sad for the events in my childhood neighborhood...and for my parents what they had to deal with.....but happy they r ok....but soooo tired....it is good to be back on MH too : )

[Stephiec79]

This Monday my ear drums feel like they are being pushed through my ear canals, my eyeballs are going to pop out of their sockets, feels like I have a lump in my throat and it feels like there is a 70 pound watermelon sitting on my spine!!!! But, my doctors would just like me to alternate ibuprofin and excedrin and wait it out until I see the neurosurgeon on March 18th! Ahhhhh, gotta love Mondays!

[selmaS]

  This weeks rant...more snow expected...possible big storm too...goodness....and it is going to be biter cold...brrrrrrrrrrr

  on a good note, the tree is finally gone : )

[selmaS]

Doesn't it feel good just  to get it out...lol...what u r going thru is so similar to what many have said as well.....I in fact had similar convo's with my DH but it was b4 my dx...but yrs of pushing myself and it just gets to a point where u just can not do it nemore.

We tried coming up with ideas for ways to make money at home....those with skills can do transcribing for medical offices...and u do it when u r up to it and from home, which for us is great...now, first u need the skills....

But, there r a few things out there....I myself am still searching for what is right for me....

"selma"

[taytay1974]

My rant today is about my pain! It is hard for me to keep the house clean let alone try and run errands. My hubby is the only one working right now and he keeps asking when I am going to get a job. I lost my job in July due to missing work because of my h/a's,joint pain,nausea and fatigue. Then in September I got a job at Old Time pottery and that lasted until November. I couldn't tolerate standing on my feet for more than 5 hours. The job involved lifting heavy boxes of stock and constantly standing and bending to put stock on the shelf which made my head pound even more. He just doesn't understand it. I have tried telling my boys who turn 12 in February about my condition and my son Noah asked me if I was going to die. I told him no it is just a very dibilitating (don't know if I spelled that right) condition. My memory loss is sooo bad sometimes it scares me. I really don't see myself working right now. But I have got to do something. We are so far behind on bills that I worry and stress all the time which I know is the worst thing for me to do. I thought about applying for disability but I don't know if I would get it or not or how I go about applying. Ok that is my rant. I feel a little bit better now. LOL

[selmaS]

well, here is the Monday rant  for this week...I like to post it early for our friends in diff time zones : )

[selmaS]

well, my rant is not medically related...so much as it is just a rant...the city is having a house razed across the street and the workers keep their trucks running all day long, the exhaust was coming into my house as a result of 3 trucks lined up in the front...I have had such a HA and been so tired as a result....they r almost done so I hope I do not have to deal with that smell nemore...yuck

[selmaS]

My sister does cross stitch too, but it is too small for me...same reason...blurry vision and I tend to do better with larger projects....

I had a baby blanket I was working on b4 I had surgery, I had sooooooo much joint pain and vision issues I never finished it...the little boy is 3....and going to have a sibling...hmmm mayb now I can finish it ....I still have times where I have to stop, but not like b4....I am getting more done...plus know I remember a little better how or what I am doing.,...lol....

Ask ur pharmacist about meds and what will or might interact...u can usually do that over the phone.....

"selma"

[chriss130]

I tried to talk to my husband today about the Chiari, and he did not want to listen. It was like he was not interested. There are days I don't want to take care of myself let alone take care of someone else. He is off all week till Thursday. I guess I am just frustrated. We leave in 8 days to go to New York. The burning pain is back in my back and lip. Nothing is working on it. I take Lyrica but I still have some Gabapentin left, wondering if it would hurt to take one of them. I hate taking pills, and I am always scared to mix them. Sorry for going on and not making sense. I have tried to do other things, I love to read and cross stitch. When you have blurry vision it is hard to do. Thanks for listening.

[selmaS]

I know just what u mean...I have little projects I do to keep me from going crazy....right now I am learning to crochet a beanie hat....lol...I made a few scarves for gifts and even made edible treats like fudge and cookies....what ever I can so I can be doing something : )

but it has to be at my pace too.....that is the big thing.....

[Braintoobig]

Thanks for the reply! I'm not doing anything right now since I'm off from school so it gives me way too much time to think about things.
I am thankful for my time off because then I can relax and sort things out but idle time drives me crazy! LOL
I told someone that I wasn't feeling good this weekend and wanted to rest today instead of going out and she replied with, "oh ya, I think something's going around cause I don't feel good either."
UGHH!! Little does she know!!

[selmaS]

I understand ur frustration and how difficult it is to wait.....goodness, it is not easy, then throw in the people around us that do not have a clue, so not  one person that can understand u r not just avoiding something..,but that u r in pain.

But, try to relax and wait...as we make poor decisions in haste....and u need to make the right ones for u to begin to feel better and get the best care possible.....good things come to those that wait : )

Hang in there
"selma"

[Braintoobig]

My rant today, I just wish people understood what this is like! I spent all weekend in bed in the worst pain I've had in months. I have no idea what brought it on. It's gone now but I'm still really dizzy.
I'm still weeks away from seeing a neurologist/neurosurgeon. I'm getting impatient. :(

[selmaS]

Molly, U r always in my prayers.....and  I am adding the drs that they have the knowledge of what to do once u got to them : )

Hang in there...the storm sounds like it will be dumping a lot of snow....
<3
"selma"

[soccero]

the dr I saw t Hopkins said I have I see their nl and opthamoligist beforee we do anything. He said it be no more then a two week wait. We finally got a call for opthamolagy and it's not untill feb. 28 and they still haven't even called about nuerolgy ugh! I was sopose to have an appt at childrens on Wednesday but because of all the snow we r sopose to get they cancelled it and rrescheduled for Thursday and I got into a local opthamoligist for Wednesday so please pray that the childrens dr will help me!!
Molly

[selmaS]

Molly...what is the status of the shunt surgery?...I thought this was being taken care of?

Drs....ugh.....

[Jennyfoo]

I ditto Molly's comment.

I think I'm going to change networks, but first, I have to see if UC Davis has a dr who does the pain Mgmt procedures I need for spondylitis, namely sacroiliac joint injections, epidural steroid injections: all with X-ray guidance, so they don't hurt more than do good.

Dr Boggan at UCDavis is listed in another website's preferred provider list. My dentist's teenage daughter saw him for Chiari. I ought to call my dentist and ask about their experience with him.

-Jenn

[soccero]

I'm just so tired of hurting so badly and no one doing anything about it.
Molly