Chiari Malformation Community
MRI CINE
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MRI CINE

I got my appointment through for a Cerebrospinal  fluid flow. Im so nervous but so excited. Im hoping this will show something that relates to my chiari instead of me being told everything is normal. what i dont understand is why im not having my full spine checked for any other problems such as a sphinx 9i think its called) will they check for this if i have restricted fluid flow. what happens if everything is normal does that mean my symptoms are not chiari related headaches pains down both arms and legs and a whole list of more. Im still waiting to be told no your really going MAD
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620923_tn?1398277065


Well it all depends on who is reading ur MRI results/films....these r their opinions...and if not well educated on chiari they may say it is "normal" when  in fact u have chiari only bcuz they were taught very old info and that is not correct......

  Always ask for copies of MRI's and the reports so u can get a 2nd opinion.......

Restricted CSF flow and over crowding...issues as to how the odontoid is leaning....can affect flow...and sometimes it depends if u r standing or lying down....not everyone needs to stand for their obstruction to be seen, but some do....

A syrinx can be found newhere in the spine, lumbar, thoracic and cervical spine...most Drs only check the cervical spine.When they do the lumbar, they can rule out tethered cord....which could also affect how u feel....

"selma"
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1667208_tn?1333111449
Good luck!  Chiari is very frustrating!  I have problems with my arms and no syrix, after my first surgery the arms felt better and the headaches were GONE!  I have to go back in for another surgery to correct a leaking patch but when things came back I knew something was wrong!  I can say though that it helped both my headaches and my arms and I feel strongly that they will get better again after the 2nd surgery.  It is very hard to get Dr.'s to do all the tests!  As Selma said, always get your own reports, that allows you to read  them or to send them off for other opinions!  The flow is hard to tell because position can make it better or worse, you just need someone that can really study your images and know what they are looking at!  Good luck with the study, hopefully they can help you!
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1608330_tn?1298136598
Thank you ladies, Im not sure if we can have our reports here in the UK but i will defiantly ask for them will be nice to see what they are hiding lol xx
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Avatar_m_tn
You should be able to get any of your medical records under the Freedom of Information act

http://www.ic.nhs.uk/data-protection/freedom-of-information-foi

Ray
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