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1587684 tn?1296930870
MRI Results of The C-Spine
The Mri Results shows a benign syrinx in the spinal cord at C5-C6. It does list Chiari Malformation. I was just wondering since it list a benign syrinx,  should I still go see the neurosurgeon.Will the neurosurgeon suggest surgery or do you think they will continue to monitor it? Can anyone speak from experience on this? Does Syrinxs continue to grow?
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620923 tn?1452919248


Hi...I do not have a syrinx, but had surgery to help prevent the formation of one.Yes, they can continue to grow, but they can remain at the same size for a long time too.

Go to a true chiari specialist to see how this syrinx is impacting u and ur overall health.

  "selma"
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1179332 tn?1297482590
Hello...I don't have a syrinx either but I do have experience with the fact that even letting the Chiari go untreated can cause a lot of consequences! The presence of a syrinx suggests to me that you probably have a blockage of CSF flow and the syrinx is the result of the high pressure it is causing on your brain and spinal cord.

I would definitely start looking for a Chiari specialist as soon as you can!

Good luck,
*Stormy*
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1306714 tn?1327260680
I would also go and see a specialist, It's best to find out what is going on and what they can do for you now. You don't want this to get worse, especially if you are having pressure headache. That indicates to me there is a blockage somewhere and you should know what is going on.  Hoping everything will be ok.
Linda :)
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1587684 tn?1296930870
I actually was just diagnosed with chiari in january.I had all the symptoms for about four years and the doctors could not figure out the problem. I am going to be searching for a chiari specialist at John Hopkins Hospital in Baltimore Maryland.
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1179332 tn?1297482590
Ugh...well I am sorry that it took so long...but it seems to be the case with most of us. I am told that the average Chiarian takes five years to be dx'd and a lot of the time they have been misdiagnosed with some kind of psychiatric issue first!! Absolutely ridiculous!!

Anyway, I am glad that you are starting on investigating specialists...good luck and let us know how it goes!

*Stormy*
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hi,
I too have a syrinx. It's between C5-7. Dagnosed around 2004. I have only minimal symptoms, thankfully, but I have NEVER heard of one diagnosed as a "benign" syrinx! If you have one, you have one and who is the radiologist to say it is benign (not symptomatic)?!
Yes, you MUST see a neurologist who knows about syringomyelia. On Long Island, NY, there is The Chiari Institute. The Drs. there, last I knew, were Dr. Roger Kula and Paolo Bolonese (sp?). I went through two full days of testing there. Also, now here in Poughkeepsie is Sol Mora who used to work down there.

Must o for now. Good luck! I'll check back.
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620923 tn?1452919248

  Hi and welcome to the Chiari forum,

You are correct,  in if you have a syrinx it needs to be looked at or monitored by a specialist like those at TCI or  Dr B at his new location.

This thread tho is old from 2011 and the person you directed your comments to may no longer be an active member.

May I ask how you are doing with your syrinx?
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1306714 tn?1327260680
It is so flustrating having Chairi,, The one thing that is so dam flustrating is when going to hospital's they don't even know what Chairi is so everytime I have to go in and speak to someone I have to explain myself. People do need to be more educated on this. Especially at hospitals. Wishing the best for you.
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