Chiari Malformation Community
MRI Results of The C-Spine
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MRI Results of The C-Spine

The Mri Results shows a benign syrinx in the spinal cord at C5-C6. It does list Chiari Malformation. I was just wondering since it list a benign syrinx,  should I still go see the neurosurgeon.Will the neurosurgeon suggest surgery or do you think they will continue to monitor it? Can anyone speak from experience on this? Does Syrinxs continue to grow?
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620923_tn?1393294254


Hi...I do not have a syrinx, but had surgery to help prevent the formation of one.Yes, they can continue to grow, but they can remain at the same size for a long time too.

Go to a true chiari specialist to see how this syrinx is impacting u and ur overall health.

  "selma"
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1179332_tn?1297482590
Hello...I don't have a syrinx either but I do have experience with the fact that even letting the Chiari go untreated can cause a lot of consequences! The presence of a syrinx suggests to me that you probably have a blockage of CSF flow and the syrinx is the result of the high pressure it is causing on your brain and spinal cord.

I would definitely start looking for a Chiari specialist as soon as you can!

Good luck,
*Stormy*
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I actually was just diagnosed with chiari in january.I had all the symptoms for about four years and the doctors could not figure out the problem. I am going to be searching for a chiari specialist at John Hopkins Hospital in Baltimore Maryland.
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1179332_tn?1297482590
Ugh...well I am sorry that it took so long...but it seems to be the case with most of us. I am told that the average Chiarian takes five years to be dx'd and a lot of the time they have been misdiagnosed with some kind of psychiatric issue first!! Absolutely ridiculous!!

Anyway, I am glad that you are starting on investigating specialists...good luck and let us know how it goes!

*Stormy*
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