The Mri Results shows a benign syrinx in the spinal cord at C5-C6. It does list Chiari Malformation. I was just wondering since it list a benign syrinx, should I still go see the neurosurgeon.Will the neurosurgeon suggest surgery or do you think they will continue to monitor it? Can anyone speak from experience on this? Does Syrinxs continue to grow?
Hello...I don't have a syrinx either but I do have experience with the fact that even letting the Chiari go untreated can cause a lot of consequences! The presence of a syrinx suggests to me that you probably have a blockage of CSF flow and the syrinx is the result of the high pressure it is causing on your brain and spinal cord.
I would definitely start looking for a Chiari specialist as soon as you can!
I actually was just diagnosed with chiari in january.I had all the symptoms for about four years and the doctors could not figure out the problem. I am going to be searching for a chiari specialist at John Hopkins Hospital in Baltimore Maryland.
Ugh...well I am sorry that it took so long...but it seems to be the case with most of us. I am told that the average Chiarian takes five years to be dx'd and a lot of the time they have been misdiagnosed with some kind of psychiatric issue first!! Absolutely ridiculous!!
Anyway, I am glad that you are starting on investigating specialists...good luck and let us know how it goes!
hi, I too have a syrinx. It's between C5-7. Dagnosed around 2004. I have only minimal symptoms, thankfully, but I have NEVER heard of one diagnosed as a "benign" syrinx! If you have one, you have one and who is the radiologist to say it is benign (not symptomatic)?! Yes, you MUST see a neurologist who knows about syringomyelia. On Long Island, NY, there is The Chiari Institute. The Drs. there, last I knew, were Dr. Roger Kula and Paolo Bolonese (sp?). I went through two full days of testing there. Also, now here in Poughkeepsie is Sol Mora who used to work down there.
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