The Mri Results shows a benign syrinx in the spinal cord at C5-C6. It does list Chiari Malformation. I was just wondering since it list a benign syrinx, should I still go see the neurosurgeon.Will the neurosurgeon suggest surgery or do you think they will continue to monitor it? Can anyone speak from experience on this? Does Syrinxs continue to grow?
Hello...I don't have a syrinx either but I do have experience with the fact that even letting the Chiari go untreated can cause a lot of consequences! The presence of a syrinx suggests to me that you probably have a blockage of CSF flow and the syrinx is the result of the high pressure it is causing on your brain and spinal cord.
I would definitely start looking for a Chiari specialist as soon as you can!
I actually was just diagnosed with chiari in january.I had all the symptoms for about four years and the doctors could not figure out the problem. I am going to be searching for a chiari specialist at John Hopkins Hospital in Baltimore Maryland.
Ugh...well I am sorry that it took so long...but it seems to be the case with most of us. I am told that the average Chiarian takes five years to be dx'd and a lot of the time they have been misdiagnosed with some kind of psychiatric issue first!! Absolutely ridiculous!!
Anyway, I am glad that you are starting on investigating specialists...good luck and let us know how it goes!
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