Chiari Malformation Community
Mace update
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Mace update

Once again we are back in New York, Mace's incision was opening & infected. She was admitted & put on meds. She had yet another allergic reactin to meds & finally today she was released. Not cleared to head home yet,she needs to see the plasti c surgeon in a few days than hope we can head back to Jersey.  We have only been home 1 week total since her fusion surg on 4/5/12. She is a tough little girl & continues to fight. She has asked me tog post her websight again & wants nothing more than to help other people fight Chiari.  WWW.SCREWEDONTIGHT.WEBN.COM.  I pray for the day my girly
can function on her own. She has been through enough!!! I do no there's. No cure for Chiari, but things have just GOT to get better for her!!!
3 Comments Post a Comment
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1827123_tn?1383868876
I am so sorry to hear this! I will be keeping her in my prayers. I will check out her webiste, I love her dedication to helping others. What a trooper!
Jiggle
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1925822_tn?1333709217
I just want to tell u that i thought of ur family a lot and thanks for ur update!!!wishing u the very best from the bottom of my heart
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620923_tn?1426651955

  Kelly, u , ur mom and especially Mace have been in my prayers daily, I am so sorry to hear about the infection and the allergy to the meds....this is pretty typical of EDSers....the allergy to meds part.

Let Mace know I did look at her website and she did a great job so far, I look forward to when she can add more to it, ad mayb I can help her too : )

I am in NY right now, and if possible would love to get to see u both...where r u staying?...Send me a PM.

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