Chiari Malformation Community
Mace update
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Mace update

Once again we are back in New York, Mace's incision was opening & infected. She was admitted & put on meds. She had yet another allergic reactin to meds & finally today she was released. Not cleared to head home yet,she needs to see the plasti c surgeon in a few days than hope we can head back to Jersey.  We have only been home 1 week total since her fusion surg on 4/5/12. She is a tough little girl & continues to fight. She has asked me tog post her websight again & wants nothing more than to help other people fight Chiari.  WWW.SCREWEDONTIGHT.WEBN.COM.  I pray for the day my girly
can function on her own. She has been through enough!!! I do no there's. No cure for Chiari, but things have just GOT to get better for her!!!
3 Comments Post a Comment
Blank
1827123_tn?1383868876
I am so sorry to hear this! I will be keeping her in my prayers. I will check out her webiste, I love her dedication to helping others. What a trooper!
Jiggle
Blank
1925822_tn?1333709217
I just want to tell u that i thought of ur family a lot and thanks for ur update!!!wishing u the very best from the bottom of my heart
Blank
620923_tn?1405964489

  Kelly, u , ur mom and especially Mace have been in my prayers daily, I am so sorry to hear about the infection and the allergy to the meds....this is pretty typical of EDSers....the allergy to meds part.

Let Mace know I did look at her website and she did a great job so far, I look forward to when she can add more to it, ad mayb I can help her too : )

I am in NY right now, and if possible would love to get to see u both...where r u staying?...Send me a PM.

Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
1755089_tn?1376057155
Blank
drewlevas uploaded new photos
3 hrs ago
620923_tn?1405964489
Blank
selmaS commented on soccero's status
4 hrs ago
979826_tn?1389039958
Blank
soccero really bad day;( Comment
21 hrs ago
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
992677_tn?1337358095
Blank
ChiariWolf
OH
5640779_tn?1375816966
Blank
desertstorm2009
AZ
7530528_tn?1405298278
Blank
AKC_75
TX
1667208_tn?1333111449
Blank
zygy2
NH
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
992677_tn?1337358095
Blank
ChiariWolf
OH
5640779_tn?1375816966
Blank
desertstorm2009
AZ
7530528_tn?1405298278
Blank
AKC_75
TX
1667208_tn?1333111449
Blank
zygy2
NH