1966715_tn?1333295491
Mace update
Once again we are back in New York, Mace's incision was opening & infected. She was admitted & put on meds. She had yet another allergic reactin to meds & finally today she was released. Not cleared to head home yet,she needs to see the plasti c surgeon in a few days than hope we can head back to Jersey.  We have only been home 1 week total since her fusion surg on 4/5/12. She is a tough little girl & continues to fight. She has asked me tog post her websight again & wants nothing more than to help other people fight Chiari.  WWW.SCREWEDONTIGHT.WEBN.COM.  I pray for the day my girly
can function on her own. She has been through enough!!! I do no there's. No cure for Chiari, but things have just GOT to get better for her!!!
Cancel
3 Answers
Page 1 of 1
1827123_tn?1383868876
I am so sorry to hear this! I will be keeping her in my prayers. I will check out her webiste, I love her dedication to helping others. What a trooper!
Jiggle
Comment
Cancel
1827123_tn?1383868876
Comment
Comment
Submit Comment
1925822_tn?1333709217
I just want to tell u that i thought of ur family a lot and thanks for ur update!!!wishing u the very best from the bottom of my heart
Comment
Cancel
1925822_tn?1333709217
Comment
Comment
Submit Comment
620923_tn?1452919248

  Kelly, u , ur mom and especially Mace have been in my prayers daily, I am so sorry to hear about the infection and the allergy to the meds....this is pretty typical of EDSers....the allergy to meds part.

Let Mace know I did look at her website and she did a great job so far, I look forward to when she can add more to it, ad mayb I can help her too : )

I am in NY right now, and if possible would love to get to see u both...where r u staying?...Send me a PM.

Comment
Cancel
620923_tn?1452919248
Comment
Comment
Submit Comment
Your Answer
1966715_tn?1333295491
Answer
Know how to answer? Tap here to leave your answer...
Answer
Mace update
Submit Answer
A
A
Recent Activity
4760166_tn?1398360913
Blank
gjjl, and The_beat_goes_on commented on gjjl's status
8 hrs ago
16744917_tn?1451270439
Blank
gjjl I have a leak and now am ha... Comment
8 hrs ago
Avatar_universal
Blank
Georgiag111 commented on photo
Feb 06
Top Neurology Answerers
620923_tn?1452919248
Blank
Allentown, PA
1306714_tn?1327260680
Blank
muskegon, MI
Avatar_universal
Blank
7530528_tn?1428275172
Blank
TX
562511_tn?1285907760
Blank
CA
Avatar_universal
Blank
Oxford, MI
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
620923_tn?1452919248
Blank
Allentown, PA
1306714_tn?1327260680
Blank
muskegon, MI
Avatar_universal
Blank
7530528_tn?1428275172
Blank
TX
562511_tn?1285907760
Blank
CA
Avatar_universal
Blank
Oxford, MI