Chiari Malformation Community
Middle back pain
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Middle back pain

Hi everyone,
I am in the midst of one of my episodes where my symptoms show up for a few weeks.  About 2 weeks ago, it was foot pain in the left foot,hen the right one.  My knees & hips started feeling very stiff and "give out", also very painful when lying down & trying to sleep (trying to...can't really sleep well when I feel like this!).  I also experience the cold/numb fingers & toes on a regular basis.  When it happens I tell my husband that I've got the dead-finger thing going on again. It's usually 1 or 2 fingers at a time. They turn yellowish-white and lose almost all feeling, other than a wierd sensation when I touch things. That lasts for 30-45 minutes usually.  And now, wow-serious back pain!!!. The cyle of random pain in my joints is normal for me and I have had back pain & sciatica before but not for a long time.  I am 15 months post-op. The pain is in the center of my back, on my right side.  It feels muscular but I haven't done anything to aggrivate it.  I know that Chiari causes a LOT of things and I am curious if anyone else "feels my pain" :)  It is a strong, sharp pain that stops me in my tracks randomly.  Sometimes even taking a deep breath is too painful. It's been happening for 3 days now.  The Ben Gay patches did absolutely nothing.  Thanks!
Related Discussions
6 Comments Post a Comment
Blank
1759188_tn?1324681908
  i  had my surgery 4 yrs ago and i feel the same pain. ive been to every kind of doctor  and i always hear nothing wrong.  Selma has the same pain
Blank
Avatar_f_tn
Thank you- I am sorry to hear that you & Selma have the same problem, but it always feels good to know that we are not alone in our suffering...and that its not all in our heads!  Have you found anything that helps?  I've just left a message at my NS office aking for a refill on my muscle relaxer and pain killer Rx.  I had given up on meds but now I hurt so much that I will give them another try!
Blank
620923_tn?1393294254

  Hi...I had some really bad pain and valium was the only thing I had and it did not work.....

I still get it, but feel it is the EDS more so then just a chiari issue.....

Have u ruled out EDS?

  The cold hands, the muscle pains...all sound like EDS pain that I am having......

  I would suggest u try a rheumatoid Dr that knows about chiari and EDS and see if they can see what is going on....

I also have TC, so some of my back pain/spasms r from that as well....

There have been times I actually had a rib shift out of place and it was very painful to breathe...and the first time it happened I had no idea a rib was out....I was not use to these things happening or how to correct them....while at my DD's I turned the wrong way and pop, it hurt like crazy.....

  DO look into this further if u have not done so.....

        "selma"
Blank
Avatar_f_tn
Thanks, Selma.  I will try to find a doc like you suggested.  I've never had my back scanned, only my brain & brain stem, so I imagine that there could be other issues going on that the doctors haven't looked at.
Blank
620923_tn?1393294254

  It is funny how so many Drs only look at the brain and cervical spine when dealing with chiari...and so many have a syrinx in the thoracic and or lumbar spine...and since tethered cord is a related condition, a lumbar spine MRI would have to be done for that as well....

  There is a clinical eval for EDS, then if u test positive they would refer u to a rheumatoid Dr for further testing.
Blank
1968463_tn?1374761413
WOW ! I have had lumbar Mri's done due to the back issues, but reading some of this makes me wonder if those "bulges" are just bulges. I really have to find a doctor that will see me for the Chiari. Hope you all feel better.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Chiari Malformation Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
How to Silence Your Inner Critic an...
Apr 16 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eaters: How to Silence Yo...
Mar 26 by Roger Gould, M.D.Blank
1344197_tn?1392822771
Blank
Vaginal vs. Laparoscopic Hysterecto...
Feb 19 by J. Kyle Mathews, MD, DVMBlank
Top Neurology Answerers
620923_tn?1393294254
Blank
selmaS
Allentown, PA
5640779_tn?1375816966
Blank
desertstorm2009
AZ
1891806_tn?1391122637
Blank
hevnw8s
Peoria, AZ
979826_tn?1389039958
Blank
soccero
germantown, MD
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI
1667208_tn?1333111449
Blank
zygy2
NH