Molly!

HeatherBelle1988

Has anyone heard how her surgery went? I've been praying for her!

Looking for Chiari Specialist in Kaiser in and around Los Angeles, San Diego

Thomas_123

Hello, My daughter is diagnosed with Chiari type1 and she has cyrinx also, a long one about 10cm long and 1cm wide. I am in Los Angele...

Anyone have any experience with ICP bolt monitor testing?

KerriC1

Hi everyone. Sorry it’s been a while. Things have been hectic. I even forgot my login so if there’s duplicates I’m sorry! Anyway I’m s...

Anyone has had these strange symptoms as well? Chiari Malformation...

Dedekinns

Hi, I am new to this. I was diagnosed with Chari back in 2019 and the neuro doctor I had thought nothing of it. My ENT was the one...

It's been a while

AnnieDear

Hello, friends. I haven't posted here since... goodness, I think 2013. I have Chiari, Syringomyelia, scoliosis, hEDS (dx 2019), and POTS....

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n40066

hi heather!
i just posted an update on the prayer thread!

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selmaS

Hi...there was an update on the prayer thread....I know the surgery was delayed until some equipment was available....nothing since.

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