Chiari Malformation Community
Mri scan, chiari??
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Mri scan, chiari??

8978852?1364661716
So heres my scan of my brain, ans according to a few friends i have on instagram that also have chiari they think i have a herniation on my cerebellum. Im just searching for some answers and I refuse to believe that im "normal" since i know with the symptoms i have Im not..  I appreciate all answers and inputs!!! Thanks!
9 Comments Post a Comment
Blank
Avatar_f_tn
And also the girl thought i had some kind of calcification on my odontoid???
Blank
620923_tn?1393294254

  Hi...it does look like there is more of an issue with ur odontoid it is kinking ur brain stem, it should not have that bend to it, it should be straight....

This is more where u have to look and have a Dr that knows about this issue.

The tonsils do not look herniated, and it also looks like CSF should flow...but I am not a Dr...JMHO.
Blank
Avatar_f_tn
And what kind of problems could that give you? if you have a kink in your brainstem?? I dont trust any doctors anymore since they have been so wrong in the past... I guess I just have to find the right doctor thats gonba listen to me and find out whats wrong....
Blank
620923_tn?1393294254

The symptoms again r similar to Chiari....but could add seizures, drop attacks or black outs to be more common with this issue.,
Blank
Avatar_f_tn
Oh ok. yea i do get where it feels like im gonna pass out alot but i never do. Ill have to ask my doc abput it. She wants to see my scans next time I come. Thanks gor your help!!!
Blank
Avatar_f_tn
What do you mean with csf should flow?
Blank
620923_tn?1393294254

  I meant with my untrained eye it does appear like there is no CSF obstruction so the CSF should flow....but, with out a CINE MRI and a Chiari specialist to tell u, this is just my opinion....again I am not a medical professional...but u asked what we thought.
Blank
Avatar_f_tn
Oh I know that. I apprciate all your help. I understand that i have to ask a doc, i just wanted someone with experince to tell me what you thought. Since not many docs know about chiari, im looking for info anywhere i can!!
Blank
620923_tn?1393294254

  No worries....

That is y we have the list of Drs the members here have been to and liked it is here for u to use as a tool to research Drs, it is not meant as a referral.
I know it is frustrating dealing with Drs that do not have a clue, but make sure when u do get info it is from a Dr well experienced with Chiari...as many give the wrong info out and it can be misleading.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Chiari Malformation Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
How to Silence Your Inner Critic an...
16 hrs ago by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eaters: How to Silence Yo...
Mar 26 by Roger Gould, M.D.Blank
1344197_tn?1392822771
Blank
Vaginal vs. Laparoscopic Hysterecto...
Feb 19 by J. Kyle Mathews, MD, DVMBlank
Top Neurology Answerers
620923_tn?1393294254
Blank
selmaS
Allentown, PA
5640779_tn?1375816966
Blank
desertstorm2009
AZ
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI
992677_tn?1337358095
Blank
ChiariWolf
OH
1891806_tn?1391122637
Blank
hevnw8s
Peoria, AZ