Hi! Newly diagnosed EDSer, long-time sufferer. I had these upright open MRIs taken 2 days ago, and I believe in the wisdom of a group much more than the jerk orthopedic surgeon who ordered them.
I've had debilitating headaches for 30 years (I'm 41) and and I have always cupped the base of my skull when asked where it hurts - and then my frontal lobe. I have seen a few hundred doctors, DCs, PTs, etc... probably just like you. My main concerns are upper cervical instability, chiari, spinal cord damage and whatever else anyone can see. I appreciate you taking a look!
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