Need Support

[nmk816]

Having a horrid day. Headache's lasted the past 4 days. Entire body hurts. Plus my neck hurts and feels like it can't support the weight of my head. I feel like I'm falling apart. Saw the NS and he says my left side is hyper-reactive and I have tethered cord plus the chiari and syrinx. I guess I just need to hear that things can get better. NS sent me to ophthalmology and for a cine MRI. Those appointments aren't until mid May. Not sure how much I can handle. Barely get through work. Life is going down the tubes.

[sandy629]

  i know how you feel sometimes you just need to vent. ive had day's were this site has saved my sanity and gave great advice. just remember we are all here and know what you are going through. selma is great, she is a good listner and gives good advice. hope you feel better  soon

[selmaS]

  Hi and welcome to the Chiari forum.

I know it seems so overwhleming to have so many diff conditions, but it is good to know ALL that is going on b4 u consider surgery.

Since ur head feels so heavy, may I ask do u feel like a bobble head, difficult to ride in a car and go over bumps, makes u nauseous?

Make sure they rule out ehlers-danlos and cerviocranial instability ...for the instability u will need flexion and extension x-rays...and a Beighton Score to see if u may have the EDS....as it can affect how u feel and heal post op should u go forward with surgery.

Have u tried a collar to help stabilize ur neck?

What issues do u have that u attribute to the syrinx and TCS?

[nmk816]

Not having surgery yet. Will probably see the NS after the cine mri. And yes, many times it seems the tethered cord and syrinx give me more problems than the chiari. Just wish this could all go away.

[KaroleR]

Awe! SM *****! It causes more pain for me then CM! Teather cord is awful! Are they doing surgery for yours?