Chiari Malformation Community
New to all of this
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

New to all of this

Can anyone tell me at what measurement surgery is typically done?  I have just received after 3 years that the brain scan that was done, after 3 years of symptoms, shows cerebellar tonsillar ectopia with a measurement of 3mm.  I am excited to finally have a diagnoses and anxious to get on with my life.
4 Comments Post a Comment
Blank
4320028_tn?1365818075
welcome... sorry u are going through this... in answer to Ur question, the size of the herniation doesn't always determine whether or not surgery in an option. it depends on the csf is blocked. also something to keep in mind is that u really want to find a true chiari specialist. when i originally had an MRI they told me my herniation was 3mm. after seeing a true chiairi specialist i was told it was closer to 6mm. i was also told that my csf was almost completely blocked, which made me a surgical candidate more than the herniation. they also look at how it affects u. there are people who have a more severe herniation and no symptoms and there are those who have a smaller herniation  and debilitating symptoms. hope this helps
Blank
5322713_tn?1366417809
I can't thank you enough!  My general dr. is saying that I may be a candidate due to the symptoms (my vision, ataxia, limb sensation, memory, etc.) Se is sending me to UVA neurology, where she has had success with other patients.

At what step are you in this process?
Blank
620923_tn?1405964489

  Hi and welcome to the Chiari forum.

Surgery is usually done if a syrinx is present, or a CSF obstruction....and it is also looked into as to how it is affecting ur overall health.

Surgery is not a cure or a fix....many times surgery can lead to other issues if additional related conditions are not ruled out b4 surgery is considered and done...so do make sure ALL related conditions are ruled out, and u research Drs and locate a true Chiari speicalist.
Blank
5322713_tn?1366417809
Thank you very much, it does seem that everything has been ruled out; though that seems to be a loaded word.  It seems to be where I am that a specialist isn't important though after speaking with those in this forum I ma beginning to understand more of the diagnosis and need for a specialty doctor.  Thank you again for your comment!
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
10322227_tn?1409285140
Blank
chiaricarley joined this community
Welcome them!
5 mins ago
1755089_tn?1376057155
Blank
drewlevas uploaded new photos
3 hrs ago
620923_tn?1405964489
Blank
selmaS September is CHIARI awarene... Comment
10 hrs ago
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
992677_tn?1337358095
Blank
ChiariWolf
OH
1891806_tn?1391122637
Blank
hevnw8s
Peoria, AZ
7530528_tn?1405298278
Blank
AKC_75
TX
Chiari Malformation Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
9 hrs ago by Roger Gould, M.D.Blank
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
992677_tn?1337358095
Blank
ChiariWolf
OH
1891806_tn?1391122637
Blank
hevnw8s
Peoria, AZ
7530528_tn?1405298278
Blank
AKC_75
TX