Not a question :D, some props actually

[lydelia]

I just wanted to say that I am so glad I found this forum and I would love to give a giant hug to the person who started it. I thought I was nuts, and I think that my husband does too. I started having numbness in my left arm and leg and head pressure, as the most common of symptoms, along with others that come and go (dizziness, vertigo, trouble swallowing, pain in my neck and limbs) and the list goes on. After seeing my GP I had an MRI where they happened to find a mild Chiair malformation. I have no idea of the mm because I didn't know to ask. Through all of this, I tried to explain my symptoms to my huband, and I think I thought I might be making it up, and then when I saw the neurologist, I really feel like he blew off most of what I was telling him. He said that my arm and leg being numb, should not be caused by the Chiari and that he thinks it is something else. He also blew of the list of symptoms I had written down saying that 'Everyone feels this way some of the time'. Jerk Face!!!!! I would not be in there if the things I were feeling were normal, people feel this way some of the time things.

Anyway, I didn't mean that to turn into a rant, but it did. I am just glad to know that there are people out there who know what I am going through, and are having, or have had, the same frustrations. :D It makes me feel less like a crazy person. Before I read these pages, I had convinvced myself I was making it up. I am lucky, I don't have much pain or terrible headaches, all of the time, but these things do cycle in and out. That is the part that I was most glad to see. Even the neurologist thinks that the pains and feeling should all be persistent if they are to be really considered, but I disagree, and it looks like I am not alone in that either.

Oh well :D I am just glad to have found you all and at least it seems, that I am on the right track by seeing someone to at least get this mess started, even if I eventually have to go and see someone else.

Thanks

Lydelia

[trebmal2]

Just like I've said to some others, YOU WERE HEARD.  You're not ranting or raving, you're expressing your feelings.  If it makes you feel better, you go right ahead, get it off your shoulders.

:)  XO Christine

* I agree.  This forum is wonderful and so are the many new friends who share Chiari with us.

[selmaS]

  Hi and welcome to the Chiari forum.

Soooooooo many of us feel just like u, so very happy and relieved to have a place to go to for support and info.There r too many Drs that do not have a clue, so it does not make one wonder when a family member or friend is at a loss to get it.....

But, u will always find some1 here that understands what u r going thru : )

And rant and vent and just talk ur heart out cuz we r listening : )

  "selma"

[niki3350]

I hear you, I would of been lost without this forum,checkout some of my posts!!!!!

Like all of us its so hard to get recognition for our symptoms.  Im guessing you have been knocked back by several nl and suggest like many will you get that chiari ns that understands.

Its taken me 3 years and im still hitting brick walls but it is getting better!!  I have found a cm specialist who I like but am stuck at the moment in a nl versus ns battle of opinion.
It *****.

Rant and vent away all you want honey, I have, still do and just find the advice of the people on here just amazing.

Hang in there
Niki x x x