Chiari Malformation Community
Not the news I was hoping for....
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Not the news I was hoping for....

Ok I am going to do my best make a long complicated story understandable.  I currently have 2 NS (one for Chiari and one for my pituitary tumor).  I had decompression with duraplasty, C1 laminectomy and a titanium plate in January of this year.  My follow up MRI 6weeks after surgery looked good.  Room for the CSF along the back and still some swelling in the front.  Dr was happy, headaches were gone.  

Fast forward to June.  My headaches started to come back, only with more pressure than before.  Called the NS they had me try fioracet and then hydrocodone.  Neither really helped.  My pituitary NS ordered an MRI for both.   Saw him yesterday and the pit tumor is not changed (woohoo- some good news!) however, I now have good flow in the front, but all along the plate there looks to be no room.  It is really tight.  Ahhhhhh...

Yes, I am sending the MRI to my Chiari dr, but in the mean time I wanted to see what you guys thought about this.  Is this something that happens regularly?  How could things get so tight so quickly?  

Any input would be appreciated....

Thanks!!
5 Comments Post a Comment
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1751596_tn?1406776760
Usually, when there is no flow at the back, the speed is increased at the front (compensation). So I think the next step is just cutting up the tonsils.
It happens, when no too much room is to be accommodated at the back - it's probably the reason why you have the plate.
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620923_tn?1405964489

  Hi I am so sorry you are having this issue....it could be a number of things....what all was done during your decompression?

You mentioned a plate, do you know how much bone was removed...sometimes too much is removed and it can cause what is known as cerebral ptosis or brain slump....

Another possibility is scar tissue developed and is causing an obstruction.....

Keep us posted on how you are doing and what you find out.
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6384874_tn?1385433406
Thanks.  I will be anxious to see what the Dr says.  I sent my MRI overnight so I would think I would hear back from them next week sometime.
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6384874_tn?1385433406
I don't know how much he removed.  I guess I didn't think to ask.  LOL.  My NS is a Chiari specialist, so I hope that's not the problem.  I asked about scar tissue when I saw my NS yesterday, he said he didn't see any.  I don't know how accurate that is.  This is the same guy who didn't think my Chiari was a problem (hes the pituitary tumor guy).

I am anxious to see when my Chiari NS says.  I will keep you posted.

Thanks for your input!
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620923_tn?1405964489

  You can call the hospital for an OR report....this will be more in depth details...( I did not get one) some feel this is best when they do have issues post op in case they end up going to another NS they have all the info right there.

The scar tissue is not always seen and it may take a certain view ( slice/angle) to be able to rule it out.

No worries.
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