I have another wierd thing that happens and I wonder if anyone else has this, too. My right hand sometimes gets really cold (compared to my left hand). I've had my DH feel them to make sure its not my imagination and he could tell a big difference. It is random, but I have noticed it many times when I am typing (like now) on the computer and other times when I'm not really even doing anything.
I have Raynaud's but that is different. This is strictly just a temperature thing there is no loss in sensation with it.
Does anyone else have these types of circulation issues? Is it something I should address with my PCP or a NL? Thanks!
I was DX'd with Raynauds and I have this as well., but my Chiari NS told me it is not Raynauds, it is Raynauds Phenomenon , so it is a little different and it is related to Ehlers-Danlos which he also Dx'd me with....
But I know what u mean, if I am holding the TV remote in my right had and flipping channels my right had gets so cold it hurts...and it also happens while typing too....not sure y, they r right next to each other, I end up sitting on my hand,...lol...
Thanks, Selma. I usually sit on mine too and then I worry that I'm going to squash it and cut off the circulation even more :D we can't win!
How do they test for EDS? I am so reluctant to go and start testing again...but I have a gut feeling that I may have it as well. I'm not double jointed but I seem to have alot of other things that are in line with EDS.
Is there any treatment for it? I guess I'll start doing more research. Thanks
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