What our experience was will not dictate urs, or even how much we liked our Dr, can not say u will as well...u have to go and meet them and see for urself which one is best for u.
I was lucky to be able to meet both Dr B and Dr O at the same location and really would have gone to either as they both were so nice and willing to talk to me....I did wind up with Dr Insinga at TCI as my Dr, and was well pleased....we have many that have been to Dr Oro and feel the same way.
We each have to decide if the dr is right after meeting them, obviously u did some homework to know who the top drs r, next u have to meet them, as u can not deal with a dr that u personally do not like, we r all diff , so u really have to meet to figure that one out.
I would look btwn the 2 u first mentioned and leave it there.....
Make sure u r checked for all related issues, ICP, disk issues, sleep apnea,syrinx,tethered cord, ehlers-danlos and go from there.
Many of us do have our surgical experience in our profiles under the journal, some of us u may have to friend to read them....so do not hesitate to ask, many also have pics of our scars so u can see what that looks like as well.
Remember u need to feel comfortable with the Dr....as well as know how experienced he is with chiari and related conditions.
Well, I love mine (in NC), but you might want to consider travel expenses -- as well as the discomfort of travel. I dread the 4 hr car ride, but I think being on a plane would be worse. Also, what kind of follow-up is proscribed.
I would ask questions to each dr.
I've also been at a major university hospital and a small 7th Day Adventist one, and I much prefer the small one.
Oh yes, there are a few good Drs down south too, one in MD and one in NC.......
I was not saying the ones she picked were the only ones, but of the ones she picked to go to 2 and see what she thought.....
My belief is we can not refer someone to a Dr, as we are all diff, and that is y I say go meet them and see who u like, and who u feel has the experience u need them to have ....u have to look at all related issues u may be having as well....some NS's may have treated chiari but have no idea what EDS is, and they should!!
I just want to clarify I was not suggesting who to go to, but of the ones mentioned to go to 2.
Dr oro is my dr but I live an hour away which is one reason. I loved him his kindness and looking at the big picture was huge. He ran so many different tests to rule out lots if things and even sent me to my pain dr when he couldn't do anymore. I know there ared alot of great drs do good luck on your journey and may you find the right one for you!
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