Pain control post-op, or in general

[The_beat_goes_on]

Most of us have probably been treated like junkies in ER rooms ... and it is insulting and my GP mentioned genetic testing for how I metabolize drugs.  Morphine, for instance, doesn't work for me.  and a few other things ... plus I seem to build up tolerances quickly and have always experienced poor pain control after procedures.  I would like to blame the hospital I'm chained to because of my surgeons, but maybe it is me.  Time will tell!  anyway, if you experience poor pain management, ask your doctor about this testing.  My GP ordered it, and later my NS sent in a genetic counselor (who will go over the results with me, I guess ...)  

http://www.iversongenetics.com/dme-genotype.html

If I am JUST in pain I do not seek treatment because of this issue, especially at ER rooms but the genetic counselor said they can create medical ID cards with whatever is found.  I'm pretty excited about this because it has been an issue since I was a 12.  I mean, really, since I was twelve.  saying morphine doesn't work.  ER personnel seem to immediately label you a drug seeker if you tell them what works and what doesn't.  

[The_beat_goes_on]

Maybe a NEW drug, and not an increase in what you have is the answer ... who prescribes your pain meds?  a neurologist? GP? Neurosurgeon?

[tattooer601]

The_beat_goes_on,
  My GP of 15 years.

[bean418]

Hello....I went through 5 years with an initial MRI stating low lying cerebellar tonsils rule out Chiari Malformation....lol for 5 years they claimed that was not the problem until a few months and and low and behold....it is the issue.  Anywho, I saw Dr. H and on first appt. I explained to him that I can not take most meds as my body seems to become overdosed on 1/4 of the rx amount then others do absolutely nothing.  He ordered Genelex.   Finally...proof to everything I have been telling the multiple uninformed drs.  Crazy stuff.  I took a migraine med and on day 3 had hard time staying awake and drove to drs. office to drop off papers and it took me 3 lost sessions before making it there.  Scary part is it's directly around the corner from my house.  That testing as well as the micronutrient testing is pretty important with all this.

[tattooer601]

Congrats on the chance for testing.
  To myself as a Chiari Patient I wish I could have my meds increased,in hopes to endure a little better,so I could do a few things without FEAR of uncontrollable pain as a repercussion.

[selmaS]

  This is an issue for most everyone that has EDS in addition to Chiari....as one of those individuals I can attest morphine is not something I can use and my Dr suggested I mark it down as an allergy instead of what does not work as it is easier when going to the ER etc....

I did get sick from the morphine....but it had no other effects positive or negative...and why I guess my Dr said to mark as allergy....but I did develop an allergy to another pain med which eludes me at the moment.....I will pop back on when I recall the name.....OXYCOTIN!! that's it....lol....that one I was itchy all over....but what is weird is a month or so b4 I had a different surgery and it worked fine no side effects...next time using it  I was going nuts scratching....ugh.