Chiari Malformation Community
Please tell me it gets better
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Please tell me it gets better

I am four days post op and feel horrible!!!! I have fuzzy vision, lots of pain and tons of stomach cramps even though I am on a stool softener. Wishing I never had the surgery at this point ;(  hoping this is all because I am newly post op.
hugs
Mazie
9 Comments Post a Comment
Blank
Avatar m tn
I hope you feel better soon. I am having surgery on6/17/13 and I am nervous. Where did you have you're surgery done? I am going to Pittsburgh.
Blank
1589097 tn?1343436712
Michigan :) I was super nervous too, not having good days is not helping , but I am only 4 days post op so.. Hopefully it will get better.  
Hugs
Mazie
Blank
1663373 tn?1333639589
This was a huge surgery, there will be ups and downs for awhile. The absolute most important thing is to rest rest rest. Everyone is different the first month was my hardest but it gets better. Don't give up and just take care your not alone!!
Blank
620923 tn?1452919248

  Hi,,,,sorry u r not doing well...but as the others have mentioned it is diff for all of us and it is hardest in the recent  days of having this major surgery......

Are u home?.....what other meds are u on?
Blank
1589097 tn?1343436712
No, I am still at the hospital , they just took me off Iv meds at one so its all oral. I'm on robaxin, zofran, and decadrone with Tylenol piggy back and stool softeners.  Hoping to go home tomorrow If all goes well on oral meds tonight.
Hugs
Mazie
Blank
3112631 tn?1356657157
It does get better! The first couple of weeks are the worst, but you will get through it. If you've lived with Chiari, you can make it through this too. Don't expect too much too soon. Just give yourself the first couple of months to rest; you won't regret it. Take care.
Blank
1823499 tn?1370093889
I live in michigan and had my first surgery at u of m.....where'd u have your surgery done by??
Blank
4816750 tn?1368808270
The first couple of weeks was the craziest pain up and down, good abnd bad.  But it started to get better about week thrre and half.  But like they all have said is rest and listen to your body.  I had to have my c2-c7 fused so it has took awhile for me to get used to it, but it can be done.
Blank
Avatar f tn
You poor thing, I am so sorry you are going through this.  I am 7 years post-op and can still remember the pain.  I think the absolute very worst was the first week.  I can promise, it does get better....MUCH better, so just hang in there.  I remember thinking I would never feel right again, but at some point the days do start to get better.  

I tried to ween myself off the Hydrocodone after the first 10 days....don't try that!  It was DUMB!  Hang in there, you will make it to the other side soon.
Blank
Post a Comment
To
Recent Activity
Avatar universal
Blank
5665 commented on Think LYRICA was culp...
Jul 21
620923 tn?1452919248
Blank
soccero, and selmaS commented on soccero's status
Jul 11
979826 tn?1389039958
Blank
soccero feeling absolutely horrible ;( Comment
Jul 09
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
1306714 tn?1327260680
Blank
muskegon, MI
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank
979826 tn?1389039958
Blank
germantown, MD
Avatar universal
Blank
Chiari Malformation Community Resources