My husband was diagnosed with CM in early 2010 after about 2 years of battling with his symptoms. We now live in New York City (since 2009) and are trying to find a Primary Care Physician who has experience dealing with CM patients to handle all his "other" symptoms/illnesses.
Can anyone recommend one? We will check if they're on our insurance, we just need some names.
He is going to see Dr K at TCI next week, so we'll definatley ask him then.
Dr K was actually the first NL to confirm that DH has a CM. We're still stumped that the CM was noted on his MRI back in 2008 but NONE of the NL's or docs we saw since then even bothered to look into it. Eventually we decided to do the research and contact the Chiari specialists ourselves.
At the very lest we would like to find a PCP who is willing to learn, but so far none of them take his current Dx and symptoms into account when treating him for other minor stuff. It's like they don't even listen :(
I'm sure you've been through this personally. Seems to be a recurring theme to having CM.
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