Problems after surgery

I had brain stem surgery in 07 from Chiari Malformation and 3 months later I suffered from seizures, migraines, and intense pressure in the back of my neck. I have had 3 MRI and have seen 2 diffrent specialist only to find out everything looks normals. Is it possible I have pressure building up in my neck? I hear snapping, crackling, and popping noises behind my ears all the time. The pressure and pain in my head is a nightmare. What is the cause of this? Why am I 10x worse after surgery?  

Also I was diagnosed with Tethered Cord Syndrome and Spinal Stenosis... Who specialisis with all these disorders??
Please Help!

Jami Kuhlman

[selmaS]

Hi and welcome to the Chiari forum.

I am not sure what u mean by brain stem surgery for chiari...I had a posterior fossa decompression...which is a surgery that can remove or shorten the cerebellum tonsils by cortorizing.....some bone is chipped away to make more room and a patch is put into place to hold the tonsils up where they need to be .......

A good chiari dr can handle chiari, tethered cord, cranial instability and more.

And many with chiari can have several related conditions as well.

Did u have the decompression surgery?

"selma"

[chadry]

Glad to see you made it over here to the forum.
Chadry

[jamijames40]

Sorry it took so long to get back to you!! Yes, I decompression surgery:)

Jami

[selmaS]

HI Jami,

Well if u have tethered cord and did not have surgery to release it that could be part of the problem as TC is a constant pulling down on ur brainstem.

Have u been to a chiari specialist?
When was ur last MRI?

"selma"