Hi, a LP is not recommended for those with chiari.....I would imagine u have pusedotumor cerebri and that is y u had the LP.......
[Normal values vary from lab to lab but typically range as follows:
Pressure: 50 - 180 mm H20
Appearance: clear, colorless
CSF total protein: 15 - 45 mg/100 mL
Gamma globulin: 3 - 12% of the total protein
CSF glucose: 50 - 80 mg/100 mL (or approximately 2/3 of blood sugar level)
CSF cell count: 0 - 5 white blood cells, no red blood cells
Chloride: 110 - 125 mEq per liter
Note: mg/mL = milligrams per milliliter; mEq/L = milliequivalent per liter]
When do u see ur dr again?...... As mentioned above all lab ranges vary, so do ask for a copy of the report from the lab it should show their ranges.
I don't see him for a month. Neither one of them who wanted me to have it done - the Primary who ordered it for me or the ENT. I went to the ER a few nights ago with the worst headache of my entire life. They wanted me to have it done then and I had to refuse it and go home bc my fiance was upset and mad that we were there for 5 hours. That the waiting room had filled up and emptied 3 times while I waited in the room to be seen. They made me suffer. If it wasn't for one certain nurse... I would have been there until the next day sometime. So anyway my ENT said I should have got it done then. I am seeing the ENT now because of possible CSF leak, my left nostril. I can't get fluid out now bc of a clearing up sinus infection. It is not bad now, but clearing up and still a bit stuffy to a degree.
So I went to have the Spinal Tap done yesterday afternoon and I am in a lot of pain. My headache not so bad at the time being. My lower side and legs hurt sooo bad. I had got leg pains before but this is horrible. Like it just triggered the old leg pain again or it is something else. I don't know. Anyway they measured opening pressure which was 11 1/2 and then did a whole bunch of tests on the fluid. I don't know the results yet. Doesn't matter if they are normal or not normal....my doctor will be sure to tell me they are normal. I am telling ya....I am working on getting a new doctor. He told me other tests were normal but they were not.
It has been a downhill battle with the Chiari and all other stuff. It is like my life just gets worse and worse because I just have too many doctors and too many different answers. I was seeing a chiari specialist - well that is what I am told. He is on the list on the chiari site. I see Dr. Benzel, but I still have my regular neurosurgeon too. I can't see him until July. Dr. Benzel said that he wouldn't do surgery because I do not have hydrocephals (sorry spelling). He had said that my flow from the flow study looked fine so no need to do surgery again. I want to feel better and wanted the surgery, because I am so sick of this and if it helps well...it was worth a try. He said it is too risky. My herniation is worse than the first time from what I was told recently in Cleveland.
They really just wanted to mainly find out if I had infection, disease or bleeding on the brain. I have not heard my results yet and it is like 1:25 p.m. I believe. I would think I would have heard something by now. I am nervous/ scared. I want them to find something but from what I hear I don't want anything wrong from Blood Tests or from a lumbar puncture. If it is a CSF leak, I have complete confidence in the Dr. From Cleveland - the ENT to do the surgery. If it is something else I will be scared to death.
I always thought a person could have symptoms of Chiari even with normal CSF flow study. So what is up with these doctors? Am I wrong? Thanks a lot for listening and your advice. I promise to not keep going on on this posting.
May I ask...have u had MRI's of ur thoracic and lumbar spine?
Did the drs rule out a syrix or tethered cord? Some of ur issues may not be directly due to ur chiari, but to a chiari related condition....
If u haven't ruled out these conditions, ask if they could at least do that.
Yes, I have had them MRI's. They never said anything about having either condition. One or two MRI's indicated that I should be evaluated further for syrnix. However the doc said I didn't have it. As far as the tethered cord, my family suspected that and said it could be missed on the MRI. I am hoping one day one doctor will really listen to me.
Gosh, now I am having intense itching on my scalp, head and face and now it is in various spots on my body!! I don't know what this could be and if all this pain in the legs and itching is caused by the lumbar puncture. Thank for listening.
It has been a long time since I posted to this a lot has happend. I have been going to the Cleveland clinic however, they stopped focusing on my back, neck and brain issues and now are concentrated on my heart...interesting! I can tell you I AM VERY SCARED!
To answer your question like 7 months later (oops) yes I do have a dimple there according to my husband (I just got married a week ago along the side of a road 5 minute ceremony - I cant take a church wedding due to my health issues). Anyway, I have that pain down there and what feels like a knot - a TON of pressure! Feels like something in there.
The radiologist said it was not due to my past puncture (12 years ago) I asked before my last procedure. He said the puncture is done in a different spot. My last puncture was like 5 months ago I believe now. I am telling you I feel like I am dying or I am going to die! Our one dog has been at my side a lot and laying on my lap - this dog has never done that in the last 7 years so that scares me even more since they say they sense stuff.
I am sure the dog senses u need to be cuddled...they can tell when we do not feel well and have compassion.....
What do they think is going on with ur heart?
There r conditions like POTS and pusedptumor cerebri in which BP plays a part.....and some have Ehlers-Danlos in which they have some heart issues, but not all do....I have EDS but not the heart issue.
Do u have a chiari specialist?......I am not sure what part of Ohio u r in, but if u r close to PA , u may want to check out Dr Bejjani in Pittsburg, PA.
I hope u can keep in touch...I know how frustrating this all can be.
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