CHIARI MALFORMATION COMMUNITY
Questions for Dr. Heffez

Questions for Dr. Heffez

Hi everyone,

I was talking to Elizabeth earlier and she suggested that I write a list of questions that I should ask Dr. H for when I see him on Wednesday. So, if anyone has any advice on questions I should ask I would really appreciate it.

Thanks for all of your help.

Meg :)
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620923_tn?1328847182
Hi Meg,

Well.....until he gives u his dx and suggestions it can be diff to have all the questions ready u will want to ask....so,

I suggest u have someone go along to take notes...bcuz we can bcome deer in headlights and forget to write things down....

Ask how to contact the dr afterward in regards to questions u thinks of after u get home.

U wan to know how they do surgery if it is suggested....endoscopy.... bony decompression or PFD...w/ duraplasty...and what kind of patch.

Will he check u for tethered cord...Ehlers Danlos....and other related conditions.

What % of benefits does he feel this will offer.

If no surgery then what treatment options r available..... pain management.....will he monitor u...how often.....

After surgery...how often will he monitor u.....

Is everyone in the OR covered by ur insurance and do they get all the info when u sign up w/ the drs office.....how much do u need to do extra?

How long after surgery do u need to remain in the area?

I am sure someone else will give a few more ideas.....

Good luck Meg !!

"selma"

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My son had his surgery done by Dr. Heffez in January 09.  He was very thourough and he also monitors additional things during surgery - I'm not sure if it's standard or not. But my son had monitoring for his nerves, they took baseline numbers prior to surgery so they know what is "normal" for each person.  

He did check for other related conditions and we also a team of people in addition to the doctor.

I sent you an im as well.
Good luck.....
Sherimom
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997898_tn?1303738464
yes...the nerve team is in every or he does!  cool, huh?
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620923_tn?1328847182
TCI also has the nerves checked by a team as well...I do not think it would be wise to do this type of surgery without this info.
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i agree!
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Thanks  to everyone, you are always such wonderful help :)
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