I visit this site frequently since I am a chiarian, diagnosed March 2010. And my battle has been like many others: doctors who claim to specialize in it but know very little!
At any rate, I wanted to make everyone aware of a competition that is waging at pepsi refresh. The website is as follows: http://www.refresheverything.com/chiari
You can vote online or via text message and the #1 and #2 winners will win a grant for 250K for the chiari cause. You can read all the details of the proposed grant on this website.
I hope everyone votes!!! We suffer as it partially because of a lack of knowledge on the part of medical professionals. With this grant, a portion of the proceeds will go towards medical professionals who want to further their knowledge of this disorder!
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