I have been told by numerous doctors in the last 6 months that I have Chiari. I recently went to Duke and the NS there ordered a cine MRI. I have the results but have not spoken with the the doctor. The results mention that my Chiari is now only 4mm and i have a "sagging brain". I have slightly diminished flow at the cerebellar tonsills at the foramen magnum. I also have a severely hypoplastic left and medial right transverse sinuses. Has anyone been given the same dx?
Ask your team about low CSF pressure, probably due to a leak in the spinal meninges... Usually very difficult to find. Normal CSF pressure reading doesn't exclude having a leak.... Treatment can be pretty straightforward: an epidural blood patch. But you need to know where the leak is!. My wife was just treated and recovering after having a 14mm Chiari, positive cine MRI and sagging brain. Took over a year, multiple neurologists and neurosurgeons. She had multiple neurological symptoms, some dimensia, memory issues, etc. Severe orthostatic headaches.
Our medical team found a small leak (upper thoractic/lower cervical vert.) 2-4 hrs post injection of contrast material in a CT myelogram. Our radiologist indicated that most of these kinds of leaks don't show up until at least a couple of hrs post contrast material.
There are specific indicators in the structure of a saging brain that point to the likelihood that the cause is CSF leak rather than congenital Chiari malformation, but not everyone knows what to look for.
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