I have been told by numerous doctors in the last 6 months that I have Chiari. I recently went to Duke and the NS there ordered a cine MRI. I have the results but have not spoken with the the doctor. The results mention that my Chiari is now only 4mm and i have a "sagging brain". I have slightly diminished flow at the cerebellar tonsills at the foramen magnum. I also have a severely hypoplastic left and medial right transverse sinuses. Has anyone been given the same dx?
Ask your team about low CSF pressure, probably due to a leak in the spinal meninges... Usually very difficult to find. Normal CSF pressure reading doesn't exclude having a leak.... Treatment can be pretty straightforward: an epidural blood patch. But you need to know where the leak is!. My wife was just treated and recovering after having a 14mm Chiari, positive cine MRI and sagging brain. Took over a year, multiple neurologists and neurosurgeons. She had multiple neurological symptoms, some dimensia, memory issues, etc. Severe orthostatic headaches.
Our medical team found a small leak (upper thoractic/lower cervical vert.) 2-4 hrs post injection of contrast material in a CT myelogram. Our radiologist indicated that most of these kinds of leaks don't show up until at least a couple of hrs post contrast material.
There are specific indicators in the structure of a saging brain that point to the likelihood that the cause is CSF leak rather than congenital Chiari malformation, but not everyone knows what to look for.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.