Severe Body Pain & Chiari

[jessbee82]

Hi all,
I hope that you are doing well and having a pain free day.  I went to see a neurosurgeon who told me that some of my symptoms are Chiari related however, he thinks that I have other bodily issues going on aswell (but he doesn't know what they are).  I have severe leg muscle tightness, my spine is rotating to the right which is pulling my shoulders and hips with it.  I have scoliosis and the muscles running along my spine are extremely tight.  When the muscles along my spine are massaged my legs fly around and I can feel different tingling sensations in different areas in my body.
Does anyone else get this, or does anyone have any suggestions for me? I really feel like there are NO answers...

[TinaM37]

I also have the very BAD body pain! Mine is in my legs and now starting in my arms. No one can tell me why. I have been trying to research on the web and have found some Chiarians have Fibromyalgia also. When I get in to see Dr. Di again I am going to ask him about this.  I see your post is from Jan, have you got any answers as of yet? Bed time is the wrost for me, if I dont have some pain pills I just cry in pain.

Thanks,
Tina

[selmaS]

Hi Jess,

Many of us do have a form of a curve or scoliosis to our spine as well as muscle spasms and joint pains.

There r related conditions like Joint Hypermobility or Ehlers-Danlos Syndrome that can play a part in all of it.

May I ask, were u ever in a MVA?

"selma"