My girlfriend is post-surgery for Chiari. She has little to no feeling both in and around her vagina, but does still get turned on so there is some sex drive, but it doesn't go anywhere because stimulation doesn't do it for her. She said the problem has pretty much always existed. I've searched some Chiari forums and found more stuff about loss of sex drive and/or headaches - neither of which seems to be a problem - and less about loss of sensation.
I want her to be able to enjoy sex... are there options to recover those feelings or are they permanently lost nerve connections?
I am 32 and have a similar issue. But it was pre op for a few years, hoping after I heal from 2nd surgery I just had it will be normal again. Our brains were compressed and the nerves effected can effect any part of our bodies. Give it time for it takes a long time even after we feel better to heal....or seek a professional opinion.
I am exactly the same as you describe. I was diagnosed a year and a half ago and the sex drive went around the same time. Stress could definitely play a part here, but I do believe that the compression can somehow play a part as well. Being 50 complicates the issue too...who knows?
I also talked to the NS about this issue. It's like after surgery my brain is upside down and going from being active to not wanting anything to do with it. I acturally went last week and bought a pure vitamin it's called: Damiana this is suppose to help with the sex drive. It's also said to help with enegy. I'm 2 yrs post op so for your GF it might just take some time. Just be patient. Maybe trying this will help. Best of luck.
Hi...this is a hard topic for many to dicuss on a public forum, and may be y u did not find as much info as u may have thought u would, use the search this community to find older threads on this topic as it has been brought up here b4.
I can attest to this being an issue pre and post op....I however did not get a dx until age 48....and I do have other related issues, so not sure how they play into it.
Do u know if ur girl friend has ne chiari related conditions, like syringomyelia, EDS, ICP, POTS , tethered cord....as they may be playing a role as well
I too have researched or tried to research this one. I have other issues besides CM that could influance this.
Ok as dear sis commented, difficult for a public forum but here goes...
Knowledge truely is power right?
Sexual Dysfunction, not a problem. No the problem is similar to what the orginal poster commented about with his compainion. I have no problem with desire or function. The problem is lack of feeling. In fact I didn't realize how much of a problem until a recent in depth neuro exam. Guys normally know if someone is thinking of touching those certian male parts. However during the exam I was laying down and was told to lay with my head the other direction. When stuck with a pin in and around the scrotum area I couldn't even tell it was a pin. That is freaky!
I'd assumed this was from other issues going on but now wonder if it could be a combined effect from CM????
I too am experiencing this problem. I am 36. I had a normal sex drive up until about 5 years ago. I have almost no feeling down there. I'm numb all over, so I do believe that is my problem. I have brought this up to all of my Dr.s and all I ever get is maybe I should see a therapist. It's really stressful because I know it's connected to the Chiari compression, but no one seems to want to deal with it.
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