Chiari Malformation Community
Sharing NS found knowledge from my experience
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Sharing NS found knowledge from my experience

I didn't mention when I received my good new's the other day that I don't have tethered cord, every thing look's really good in the inside, just need time to heal.  For those of you who doesn't know my story I want to share a little of it with you because when I was in seeing my NS we were talking about my surgeries.  I had to have 3 surgeries in all because of CSF leak's.   My NS said I was a mystery case because he couldn't figure out why my body was rejecting the stitches they put around your dura.  He told me he has had several people come to him to fix other dr's mistakes and he told me he has opened these patient's up and he think's of me and how he ended up fixing my leak's.  He used Muslin.  I told him I guess this journey was meant to be and I'm very thankful through all the surgeries I went through he has learned to help other's.  It gives me a good feeling knowing all of this happen's for a reason.  If I have to be the one to endure some pain to help other's.  I'm very thankful for that.  Also very thankful that I am now healing and nothing wrong is going on inside.  Hope this story gives some of you hope and also to let you know.  It is all worth it in the long run.  We all learn from our experiences.  I'm thankful my NS learned something to help other's.
Blank
620923 tn?1452919248


  So glad u and ur Dr are learning just how much those of us with chiari  go thru...

  Thanks for sharing Linda : )
Related Discussions
3 Comments Post a Comment
Blank
999891 tn?1407279676
It is good to hear some positive news, all to often we hear the negative and this can be discouraging for people who are new to CM & it's related conditions.
I wish you well on your journey of recovery and healing :)


Blank
992677 tn?1337358095
Thanks for sharing that...

Painful story, but it sounds like a pleasant Dr. I do hope your healing continues on the up path.

CW-∞
Blank
620923 tn?1452919248


  So glad u and ur Dr are learning just how much those of us with chiari  go thru...

  Thanks for sharing Linda : )
Blank
Post a Comment
To
Recent Activity
Avatar universal
Blank
Avatar universal
Blank
Ball123 commented on photo
Aug 26
Avatar universal
Blank
Ball123 commented on photo
Aug 26
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
1306714 tn?1327260680
Blank
linnielou232
muskegon, MI
7530528 tn?1428275172
Blank
AKC_75
TX
Avatar f tn
Blank
KerriC1
979826 tn?1389039958
Blank
soccero
germantown, MD
Avatar f tn
Blank
lasel22
Chiari Malformation Community Resources
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
1306714 tn?1327260680
Blank
linnielou232
muskegon, MI
7530528 tn?1428275172
Blank
AKC_75
TX
Avatar f tn
Blank
KerriC1
979826 tn?1389039958
Blank
soccero
germantown, MD
Avatar f tn
Blank
lasel22