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620923 tn?1452915648

Sign up here to work on our CHIARI BOOK

Hi...we have been discussing creating a book for chiari awareness.
Please use the comment area to post ur name if u want to be included in the compilation of the book.
We will make it a vote to how it will be offered.

so cast ur vote and add ur name if u want to help.

Can u help?
48 Responses
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Avatar universal
I would love to help. let me know how. I have post op photos of the healing incision
Helpful - 0
Avatar universal
yes...I would like to be part of this book. Count me in !!
Helpful - 0
Avatar universal
I would love to be part of this journey....awareness, awareness !!!
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER
The book has been back burnered for now and we r working on a e-newsletter.

I do post interview questions for certain articles we r working on.

We appreciate all the interest this thread is getting, and will keep everyone up to date on our release of our live date on the newsletter.

Helpful - 0
1123771 tn?1269221496
I am will to help and interested in any book or publication that you make.
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707040 tn?1473944794
willing to help out.
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679866 tn?1240005366
Yes Selma. Please let me know if you would like my input. More than happy to help
x Sue
Helpful - 0
Avatar universal
Iaam thanking everyday that I wake up.We can all  be grateful we are alive even with our problems. maybe someday the neuroligist [sic]? will be able to diagnost? our problems more rapidly and help will even sooner for the ones that need surgery.  I am not trying to preach I am just thankful for the many new developments in NS with each one that is just that much more knowledge that the drs have to treat other people.  I hope I am not sounding like an idiot but as in one of my other msgs my story is very long and complicated. good luck to all who are going into surgery and all who are trying to deal with this problem of chiari . lol hh505 in fla.
Helpful - 0
1079987 tn?1258040916
Will do....what a great idea you have :)
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620923 tn?1452915648
COMMUNITY LEADER
Hi Meg...thanks for offering to help...right now we need stories....so use the journal feature here on MH and start with b4 dx and thru getting dx and finding drs ect...all the fun....don't worry if u r not a writer...us bullet points if u need to.

I will let u know what else is going on as it happens : )

Thanks again

"selma"
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1079987 tn?1258040916
I would love to help in anyway I can, just let me know if and how you would like me to help.

Meg :)
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1061009 tn?1260537094

dear selma

i sent an offer to help and i plan to spend X amount of time each day on my journal as this is what you suggest.  i will wait to c if u send me an invite :)
i sure hope so....

thank u
anita
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620923 tn?1452915648
COMMUNITY LEADER
All interested members, please document ur chiari journey in ur MH journal....as we need info we will pull from ur journal.

We r not yet ready for the stories, but please track all info even if u r not sure it applies....all u go thru  is relavant.

Thanks

"selma"
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1061009 tn?1260537094
i feel honored to be part of Kelly's dream...what a beautiful name to all who thought of it!  I AM ALL IN!!!   i have resources that i am happy to provide...just name what we might need and i will check further and do whatever i can.     THANKS FOR THIS GOLDEN OPPORTUNITY!!  i hope i am able to do my part with this wonderful group that has been such a blessing to me :)  peaceful prayers to all!!   anita
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER
Hi and welcome to the chiari forum.

I am glad u want to help and I ask that u participate by adding ur story to this thread....we also have a thread called Wednesday's Workshop...please just get involved with the threads here......we appreciate ur enthusium and interest.

"selma"
Helpful - 0
Avatar universal
I hope I' doing this right!  I would love to be part of this,,,Just let me know what to do please
Helpful - 0
1079186 tn?1258221120
I would love to help too.  Anything to get awareness out!
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER
Hi...well it is a private group called Kelly's Dream...I will send u an invitation and u join and all the info will be posted in there.

"selma"
Helpful - 0
Avatar universal
Where do you find things about the book? I am not sure how this works?
thanks,
Chadry
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620923 tn?1452915648
COMMUNITY LEADER
HI Elle...love to have u as well..will send an invite....... : )

"selma"
Helpful - 0
800724 tn?1254440318
i wanna help tooo! =)


~Elle~
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620923 tn?1452915648
COMMUNITY LEADER
Hi Marilyn...love to have u on board as well...I will send the invite : )
Helpful - 0
1060970 tn?1267839740
I will be happy to help.  
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER
Very happy to have u on the team as well...will send an invite.

"selma"
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