Sign up here to work on our CHIARI BOOK

[selmaS]

Hi...we have been discussing creating a book for chiari awareness.
Please use the comment area to post ur name if u want to be included in the compilation of the book.
We will make it a vote to how it will be offered.

so cast ur vote and add ur name if u want to help.

Can u help?

Return to Poll

81%

 (22) 

yes- I will help

7%

 (2) 

no-sorry, but interested in seeing the book

0%

 (0) 

no-

11%

 (3) 

would like more info

27 Members voted

[rod44]

Count me onboard Selma

[ChiariWolf]

Selma,
I am interested.

[shanmomof3]

I'm onboard too!

[anm830]

I would like to help too.

[n40066]

i'd love to be part of this!  need a writer?  i promise to use spell check!  lol!  and caps where i'm supposed to!  lol!
elizabeth

[Zenji]

I had to withdrawal from school again so I would love to help...I go so crazy when I am bored

[selmaS]

Great...I am soooooooooohappy with the responce.

I have named the group page from where we will have our info meetings and votes on how to move forward.
In Memory of Kelly Morilli I have neamed the group Kelly's Dream.....she was a bright light for chiari awareness and research funding.....I feel we r continuing on for her.

Zenji- sorry about school.
Lizzy- love to have u help write, u have such a flair
Wolf-love to have ur input and insights
Shannon- happy to have ur input also
anm- welcome aboard
ROD- hey Ray....need u here too!

[phoenix63]

I would love to help in any way that you need me.
I love to write and what a great cause and legacy to leave for all of us, and Kelly would feel like we finished the work she so desperately wanted to do, even on her death bed I hear she was still trying to help others realize what we go through and those who are afflicted by cm.Selma you are a great inspiration to all of us to. Kind of feels like kindred spirits if we work together our works becomes one.
I know that sounds dopey but what can I say !!!
good luck to you all, lol
Suzanne

[selmaS]

By now u all have received an invitation to join a group called Kelly's Dream...this is in memory of Kelly Morrill who pasted on Oct 10th.....she was an active chiaraian in chiari awareness and research funding.

This group is where we will work on our arwareness projects like our book.....please clik on the link in the invite and then join the group.

Thanks for joining us !!

"selma"

[northernstarmn]

Id love to help on this if I can add anything.
Lisa

[selmaS]

Great Lisa I will send u an invite.....

[Roy902]

Selma,

  This is a great idea...  I am definately on board with this project.

Roy

[selmaS]

HI Roy...glad to have u onboard...I will send u an invite : )

"selma"

[chadry]

I know about graphic arts. Well I got my degree a few years ago but can still do some designing. Some of my skills may be a little out dated but I can still be creative and help out if needed..
Chadry
(Christina)

[selmaS]

we would love to include ur input...I will send u an invite : )

"selma"

[chadry]

that's great

[soccero]

I'd would love to help since I'm not in school either but am not sure how I can if u let me no what I can do I would love to help
Molly

[selmaS]

HI Molly...Love to have ur prospective as well...I will send u an invite : )

"selma"

[celticbreeze]

Count me in too!!

[selmaS]

Ok...will send u an invite to join...also see our pics for a poll...3 individual posts need to be looked at then decide which one u like beast and vote : )

"selma"

[WeddingJean]

Again, I am a "day late & a dollar short", but I would love to help however I can. Whatever has been shared here has been a tremendous help & comfort to me and I want to "pay it forward." If we can continue to offer support to others, I'm in!! And to follow in the footsteps of Kelly would be an honor!!   ***Jean

[selmaS]

Hi Jean...love to have u on board...will send an invite : )

"selma"

[n40066]

well said jean!  glad to have you with us!

[Prism272]

I'd love to help honor Kelly's Dream.

[selmaS]

Very happy to have u on the team as well...will send an invite.

"selma"

[tysgmother]

I will be happy to help.  

[selmaS]

Hi Marilyn...love to have u on board as well...I will send the invite : )

[chiarigirl11]

i wanna help tooo! =)


~Elle~

[selmaS]

HI Elle...love to have u as well..will send an invite....... : )

"selma"

[chadry]

Where do you find things about the book? I am not sure how this works?
thanks,
Chadry

[selmaS]

Hi...well it is a private group called Kelly's Dream...I will send u an invitation and u join and all the info will be posted in there.

"selma"

[casepacker]

I would love to help too.  Anything to get awareness out!

[lisette_36]

I hope I' doing this right!  I would love to be part of this,,,Just let me know what to do please

[selmaS]

Hi and welcome to the chiari forum.

I am glad u want to help and I ask that u participate by adding ur story to this thread....we also have a thread called Wednesday's Workshop...please just get involved with the threads here......we appreciate ur enthusium and interest.

"selma"

[anitalounurse]

i feel honored to be part of Kelly's dream...what a beautiful name to all who thought of it!  I AM ALL IN!!!   i have resources that i am happy to provide...just name what we might need and i will check further and do whatever i can.     THANKS FOR THIS GOLDEN OPPORTUNITY!!  i hope i am able to do my part with this wonderful group that has been such a blessing to me :)  peaceful prayers to all!!   anita

[selmaS]

All interested members, please document ur chiari journey in ur MH journal....as we need info we will pull from ur journal.

We r not yet ready for the stories, but please track all info even if u r not sure it applies....all u go thru  is relavant.

Thanks

"selma"

[anitalounurse]

dear selma

i sent an offer to help and i plan to spend X amount of time each day on my journal as this is what you suggest.  i will wait to c if u send me an invite :)
i sure hope so....

thank u
anita

[merlot3106]

I would love to help in anyway I can, just let me know if and how you would like me to help.

Meg :)

[selmaS]

Hi Meg...thanks for offering to help...right now we need stories....so use the journal feature here on MH and start with b4 dx and thru getting dx and finding drs ect...all the fun....don't worry if u r not a writer...us bullet points if u need to.

I will let u know what else is going on as it happens : )

Thanks again

"selma"

[merlot3106]

Will do....what a great idea you have :)

[hh505]

Iaam thanking everyday that I wake up.We can all  be grateful we are alive even with our problems. maybe someday the neuroligist [sic]? will be able to diagnost? our problems more rapidly and help will even sooner for the ones that need surgery.  I am not trying to preach I am just thankful for the many new developments in NS with each one that is just that much more knowledge that the drs have to treat other people.  I hope I am not sounding like an idiot but as in one of my other msgs my story is very long and complicated. good luck to all who are going into surgery and all who are trying to deal with this problem of chiari . lol hh505 in fla.

[Hursty48]

Yes Selma. Please let me know if you would like my input. More than happy to help
x Sue

[sherimom]

willing to help out.

[amberrgen78]

I am will to help and interested in any book or publication that you make.

[selmaS]

The book has been back burnered for now and we r working on a e-newsletter.

I do post interview questions for certain articles we r working on.

We appreciate all the interest this thread is getting, and will keep everyone up to date on our release of our live date on the newsletter.

[Neyklem]

I would love to be part of this journey....awareness, awareness !!!

[Neyklem]

yes...I would like to be part of this book. Count me in !!

[sawyergirl]

I would love to help. let me know how. I have post op photos of the healing incision