I have recently been diagnosed with Sleep Apnea. I was wondering if anyone else had both Chiari Malformation and sleep apnea. I am also on oxygen at night because my oxygen was dropping really low, into the 70s, at night while asleep. Just wondering. Thanks
I have severe sleep apnea and have to wear the mask as well as have oxygen at night. I completely understand about the mask... it is AWFUL. You kind of get used to it, but it is really uncomfortable at first. They say it takes a month to get used to it and for it to work. I was falling asleep sitting up, and when I did sleep I would snore so loudly I woke myself up, wake up gasping for air, and I was so tired all the time. Try a bunch of different masks, thats what I had to do. I like the micro/ultra because it is so small. Good luck with everything. There is a surgery they can do, but if you have bad sleep apnea like I do its not recommended. I would love to hear what your doctor says, if you don't mind. I would really appreciate it. I hope it all works out for you.
I have both Sleep Apnea and Chiari Malformation. I started a post a few months back I believe. I sounds like they are relarted but I am still waiting on the doctors to get me more factual information. I have been doing my own research but I am no doctor nor would I ever claim to be. So I need to get the real for the professionals who I have to trust.
As for the masks, i have tried a few different type, and i recently switched to a full face mask that covers my mouth and nose. The mask is much more comfortable that any others i have tried. My wife likes it too because it hides alot of the noise associated with the machine.
That's the weird part. As far as I know (and my wife agrees) I don't have problems when I'm asleep. I have a lot of trouble getting to sleep, but once I'm asleep, I sleep fairly well.
I've always been a light-sleeper, but I don't snore badly, I don't jerk myself awake during the night, or any of the other symptoms most people talk about with Sleep Apnea.
I suppose I'm somewhat more tired during the day than I used to be, but nothing more than I would assume someone with a sedentary lifestyle, like I've developed since my decompression surgery, has. I don't nod off during the day or feel particularly tired or anything like that.
I see this post is a little old, but I wanted to say yes, I have both. And Brain stem compression (caused by the pressure of the herniated tonsils) causes Sleep Apnea. Brain stem symptoms are serious when it comes to CM, your brain stem controls your heart too, usually with CM and sleep apnea also are history of SVT's or other arrhythmias. Good luck and hope you're doing well.
I also have Sleep Apnea from what I have heard it is something that is very common with Chiari people. I also found out there are 2 kinds so be sure that you know what kind you have. One the air way is blocked and the other the brain forgets how to breath. There are different treatments of them. The second is the worse. so don't put treatment off if you have it. I have had my cpap machine for about 4 months now. I went from sleeping and hour here and and hour there may be getting 2 to 3 hours of sleep a night. Right from the start of using my cpap I got better sleep. I didn't move around as much and starting sleeping longer. I have worked my self up to about 5 to 6 hours of sleep a night now. After year of only 2 or 3 broken hours that is great. My monthly average this month is 5 1/2 hours a night.
I had my decompresion operation in June of 2009. I went for my sleep study Friday night and today was told that I also have Sleep Apnea. They told me that the machine could also help with my headaches, I hope so cause even after my operation my headaches are coming back just as bad as before the operation.
I have Chiari 1 but I am going to walk into my healing and trust God more, yes I have headaches I get them more so certain times but I watch what I eat and stuff, I did a sleep study I really think they confuse all these symptoms together because I had fatigue before I ever was diagnosis with the Chiari but I don't snore just a normal like most of us if it was up to 99% of these doctors we all would have sleep apena. Now don't get me wrong some people truly have some issues but as I was reading my test results I am mild in all areas and then I read one line that said my lowest O2 level recorded was 83% but what about the other number now if it stayed that low all night that would be different but there is no way, I would have woke up tried and the place I went to was uncomfortable, I didn't feel safe , I was afraid to go to sleep, had a next door room mate that coughed all night so I was suddenly awaken by that so guess what it was unfair and I got no sleep and yes I expressed this all then she wanted to do part two and give me sleeping pills I said, I don't think so I will not take them. Now I know alot of you complain about sleep going to sleep is not a problem for me and this is one of our symptom but if you give me a sleeping pill and put me in a deep sleep then of course you will get every result you want from the test because it will be consider an un natural sleep. be careful and do your research, I will be expressing my concern with my family doctor also and the fact that she was suppose to do a breathing test on me and never did she looked at me and diagnosed me with sleep apena and oh my sister sees her so she thinks it is hereditiy and that doesn't work for me.
Not all of us with Chiari have sleep apnea, but we should rule it out as it is more common for those with Chiari....and it is worth ruling it out....
Bcuz of the issues going to a sleep clinic u can do a sleep study right in ur home, they do the oxygenation of the blood testing first...and if a sleep study is warranted then u do that over 3 nights in the comfort of ur own home.Research NOVASOM.....ur family Dr can set this up and most INS will cover the costs.....
With pain, we will have fatigue.....and most of us do sleep but do not feel refreshed.
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