Chiari Malformation Community
Sleep apnea dx, no compression, should I see Dr. Di???
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Sleep apnea dx, no compression, should I see Dr. Di???

Visited Cleveland Clinic last Monday to have a full MRI of my back and CFS test done. The spine dr told me that he agrees that I have Chiari malformation; however, there is no blockage. He is not a Chiari specialist. He also told me that no surgeon would operate on me without blockage. Upon me asking he said that he did not do contrast (if that makes a difference)...

Today I went to a home healthcare company to pick up my CPAP machine since I was dx with sleep apnea last Thursday. whoo-hoo. It is truly my hope that sleep apnea is causing all my symptoms of memory loss, dizzyness, fatigue...

However, should I still see the chiari specialist. Dr. Di. My appointment is next month so my CPAP will have been being used for 30 days so I should know if my symptoms have settled. It is a six hour drive from my home so it is always a two day trip. We all live our own lives; however, what would you do?

Lastly, the spine dr referred me to the "Pain Center" which basically is making me feel like a hypochondriac. UHHH. If anyone on here has apnea and has advice...awesome. Will also be checking out that site too....
Related Discussions
3 Comments Post a Comment
Blank
620923_tn?1416285879
HI...see Dr Di...sleep apnea is a side symptoms of chiari.....do  get an true specialists opinion....even if u r not a surgical candidate now, u should have one monitor u. Plus, a spine dr is not the best judge on this as he does not treat it.
Let Dr Di ***** u.

Good luck with the CPAP!!
"selma"
Blank
620923_tn?1416285879
Blank
1179332_tn?1297482590
I agree...I would still go see Dr. Di. I don't believe that the flow test is 100% accurate on telling whether Chiari is symptomatic..it is just one of the factors that they take into account. You have to remember that test is done sitting down and once you stand up the herniation could be plugging things like a cork.

This other dr was not a Chiari specialist..and I would really get an opinion from someone who is.

I hope that you get the sleep apnea under control.

Carolyn
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
Avatar_n_tn
Blank
Alanjb commented on An Insider’s Guide to...
7 hrs ago
620923_tn?1416285879
Blank
soccero, and selmaS commented on soccero's status
Nov 19
979826_tn?1389039958
Blank
soccero have a terrible headache am... Comment
Nov 17
Top Neurology Answerers
620923_tn?1416285879
Blank
selmaS
Allentown, PA
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
Avatar_m_tn
Blank
Ball123
1667208_tn?1333111449
Blank
zygy2
NH
246139_tn?1410875443
Blank
baccalynnwv
WV
7489440_tn?1392096009
Blank
kwalker0004
Pocomoke, MD
Chiari Malformation Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1416285879
Blank
selmaS
Allentown, PA
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
Avatar_m_tn
Blank
Ball123
1667208_tn?1333111449
Blank
zygy2
NH
246139_tn?1410875443
Blank
baccalynnwv
WV
7489440_tn?1392096009
Blank
kwalker0004
Pocomoke, MD