Hi again! I have another question. Does anyone else with a Chiari diagnosis have trouble sleeping? I can't sleep past like 3 AM. I'm a walking zombie. I'm actually thinking about not driving anymore if this keeps up. Is this normal?
Most of my symptoms cycle,they may last days, weeks or months....I do have sleeping issues, I have times when I cant sleep, then maybe I get a few hours....this may last for weeks or months then I have times where I sleep for hours get up for one or two hours and go back and sleep.....
My problem with sleep is that I am ALWAYS tired and can fall asleep anywhere. I fall asleep before my head even hits the pillow, whereas I used to lie awake thinking the day over and planning for the next day. I am having a sleep study done on Dec. 18th, so hopefully that will give me some clues as to why. I also suffer with restless leg, but am only aware of those symptoms during the day, strangely.
Have those of you with trouble sleeping ever tried taking a prescription sleep aid -- the non-addictive, non-groggy ones that I can't remember the names of now. My mom used one when she had trouble sleeping before her neck surgery and it helped a lot (the meds she was taking caused her to have trouble falling and staying asleep). Good luck!
I've had and still have issues sleeping. There are days when all I want to do is sleep and I can't but then there are days when I sleep with no problem. I do find myself noticing that this is a cycle issue with me. I do not take anything for it as I don't like taking too many pills. I can sleep only at certain places....like my mom's house when we go to visit or my in-laws house...but I ALWAYS have to fall asleep in the car. I don't know what it is with it, but I'm guaranteed to fall asleep ALL THE TIME.....sometimes within the first 5-15 minutes of being in it. Don't know what that is all about but at least I'm getting sleep.
I"ve been an insomniac from way back....I use to go to doctors and about my sleep problems and they were so mean to me. telling me to get a hold of myself.... well I went through total misery for years with maybe only 2 hrs sleep a night,, never could sleep during the day no matter how tired I was... I thought I was going to go crazy,,, with never sleeping...........till I finally found a dr. who put on something to help me... Now I"m on a very mild sleeping pill every night...and most likely be till I die..
Some of us just have to give in and take something for sleep,,,, I know had I not been put anything, I would've died ......I couldn't function anymore with 1-2 hrs of sleep for 5 yrs till I got help....
God,, I pray you will find something for sleep soon........
Sleep?? What is sleep?? I had 2 hours last night. THANK GOD FOR COFFEE. I went to work today and was not good. I have sleep meds but don't want to HAVE to take them every night. When I was dx with a chiari and read the symptoms I wasn't surprised sleep problems was one of them.
I'll be taking my meds tonight and I BETTER get at least 6 hours. NS in the morning so I'll probably be worried about that! :( oh boy, I'm done venting.. I'm tired.
Sleep tight everyone.
Kim in NH
I am now having sleep issues and am post op. I essentially have become nocturnal... I get tired at night but cant fall asleep and if i do I wake up easily sometimes just for no reason other times just for the slightest sound or weird dream....any advice anyone? Once I finally do fall asleep between 1 and 4am I sleep all the way till anywhere from 12-4pm... I dont know what to do this is not good because I am starting to get bags and black circles under my eyes. It all started once I went into the hospital for surgery...
I had sleep issues horrible and then just had my decompression srugery 11/24 and now I can't sleep at all!
I'm going to ask him when I see him Friday what the deal is!!
I'm sleeping 3-4 hours!
Before dd had surgery she would go days without sleeping. She was a mess. Since surgery she is now falling asleep till 2am but sleeps till 10:30 so that is just the college scene. I was so worried about her preop never seen someone that could not fall asleep no matter how tired they where.
I'm 17 been diagnosed with cm1 7.84mm and I have headaches like no other brother! Dizziness and sore throats and liquid feels like it's draining over my abdomen and sleeping is horrid! I start to doze and instantly wake in a state of shock basically! An my eyes play games. Black spots in my vision my right eyes tends to vibrate sorta an my eyelids tend to twitch ALOT. any thing I can do besides surgery? What headache meds help???
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