There is debate among radiologists whether 3mm or 5mm tonsil herniation is considered Chiari I. If a doctor does not consider 3mm to be Chiari I, would it be Chiari 0. I do not know if some radiologists believe in Chiari 0.
I am looking for a neurologist or neurosurgeon who believes 3mm herniation is Chiari I to treat me. Please recommend a doctor to me. Thank you.
Finding a NS that believes in chiari 0 and a NL can be a chore depending on if u r looking to keep it close to home or if u can travel.....if u can travel, u should be able to find a Dr.
But, even a Dr that believes in chiari 0 which means- ur skull is malformed and u have a CSF obstruction with minimal herniation...and the symptoms are affecting ur everyday life and overall health.
Not all with chiari are surgical candidates, so it is ur symptoms and how this is affecting u that the Dr will also look at closely.
The problem with radiologist and general NS's is they got all their info on chiari from Med school, a true chiari specialist is doing their own research and changing the definition of how to dx and treat chiari.
Do see our list of Drs to research...the list is not a referral and not all drs on the list may be a true chiari specialist, they r the names of the members Drs...and it is meant to help u get started on ur research.
I agree with Selma. With my 1st MRI it showed 5mm herination 2 MRI yr later showed 6.5 mm. As Selma say's it is not the herination it is the obstruction. Also having the true Chairian specialist that know what they are looking for. Having Chairi and finding help for it is difficult because a lot of medical facilities don't know much about it. The referrel list Selam has directed you to is very helpful. Doing research for yourself is the best medicine. It is all a major decision and all are different. It depend's on how having Chairi is affecting your life. As my dr said to me. "Can you live the way your living"? I answered. "No". he then stated it doesn't get better for most when it get's to a certain point. This is why some of us have decided on the surgery alternative. Keep us updated on your journey. We are here for you for support. Best of luck with finding answer's that is best for you.
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