Yes...I had my surgery there : )
Hi Guys,
Thanks so much for taking the time to respond to my post. You guys make a good point... In order for me to even get the appointment with the Chiari Institute I had to mail them all of my reports and discs. They have seen my past images... I am just so nervous about this appointment and then to read this report.. It just added. I'm not sure what TCI will say or if they can even offer me help but I'm desperate to feel better. Have any of you gone to TCI?
I'm surprised they didn't mention whether your CSF flow was normal or not considering that is the point of a CINE MRI for chiari. I would call and see if you can get some explanation from the radiologist because it is indeed odd that this is so different than 3 other MRIs. Also, I'm pretty sure having any herniation of the tonsils at all meets criteria for Chiari even if it isn't a classic case. People do often have one side of the tonsils that is herniated differently than the other.
Anyway I wouldn't worry about it because at the Chiari institute I'm sure they'll want to see the film for themselves and they'll know how to interpret them correctly.
Hi Krista....no worries...I had one tonsil at 6mm and the other at 4mm...it is possible for the herniation to be asymmetrical and not bilateral.
Keep in mind this report is the opinion of the radiologist and most NS's will look at the MRI's and make their own decisions ....
Chiari is the malformation of the skull....the herniation is the result of the malformation and lack of space....the Drs at TCI may not find u a surgical candidate if u do not have CSF obstruction and or overcrowding.
This states u do have crowding, and pulsations of the CSF.....the pulsations of CSF is an indication that ur CSF is moving with the BP...showing there is some restriction to normal flow.
This along with ur symptoms and ur quality of life is what ur drs will use to determine if in fact they feel the benefits of surgery out weight the risks.
Hope this helps : )
Good Luck at TCI...please post an update
"selma"
Hello,
I know it is not uncommon for them to asymetric. I dont know how they treat that. I had one person tell me that they might average them? Not sure! I am assuming they have seen your scans already at TCI? I dont believe they agree to see anyone they dont think they can help. Do keep in mind that the size of the herniation is not important it is whether there is csf blockage or crowding.
I also had the thornwaldt cyst... that is crazy. I went to the ENT to make sure and it was nothing to be concerned about unless it grows...which usually doesnt happen according to the ENT that I saw. I also think alot depends on the views and who is doing the measuring. So try not to worry.
I hope you have a safe trip. Do keep us posted!
Pam