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Avatar universal

Space Bubble Issues

Does anyone else have space bubble days? Or I guess a better question would be who has them. I find myself going through spells where noise bothers me, and I don't want anyone to talk to me or touch me at all. Not my husband or my kids or anyone, and if they do it makes me want to snap.

Just curious. I am wondering this is maybe a chiari thing. I think the noise thing is but I am not sure about the space bubble thing, re: not wanting to be touched.

Thanks
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4175869 tn?1351113817
Wow! I was just newly diagnosed with CM, and this sounds just like me! My husband and kids think I am just being annoying with the sounds...I am at the dinner table constantly telling them to chew with their mouths closed, more quietly...they just look at me like, really mom? There are times that my husband will rub my arm and I feel like there are creepy crawlies going up and down my arms....this was all before I was diagnosed....it is making so much more sense! I have learned so much by reading these posts!
Helpful - 0
3057101 tn?1360374109
Yes, That's what i do, step away. but mostly isolate my self . its our brain being overstimulated by everything in our enviorment. si true, i hate the way, my.husband chews sometimes. i feel like i could strangle him. ,lol.. jk... my family has been great, my kids are great. they try to be as courteous ,as much as being a kid allows them to be... i try very hard not to hurt there feelings and if i catch myself most.of the time..,i will apologize later,.we are only chiari patients!!! lol!! i will say this, i have learned to listen to my body and brain. i have learn alot in the past months.. there is nothing wrong with being sel fish sometimes... not in a bad way.. we need to care of ourselves  that we can take care of those we love and depend on us.. we cant to do that, if we are not well  mentally and physicallly. this notion is not foreign to be, only in that i am starting to understand the meaning behind it.  ”Me first,  Me second and Me third. ”.above god of course but that goes without saying!! Its a saying in spanish, my aunt told me a ling time ago...
Helpful - 0
Avatar universal
Imo, reflection, prayer, meditation, or just staring into space or at clouds is exactly what we need to heal.  In some ways we are like TBI patients.
I think our heads are like Faberge' eggs.  
;)
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  I can not stress enuff u need to rest, rest and then rest some more....and that is a great way to put it, lone quite time....

Post op I did not want company and noise etc....and I enjoyed the quiet,....even in the hospital I knew I did not want the TV on...even now I can go most of the day with just soft music playing...not the TV as it cn be stressful...those chase scenes the music they play gets my heart racing, I do not like it...lol...and we all have to remember that our brain had a trauma, the surgery itself and needs to recoup, the noise and all the input does not allow for it to rest...

Being reflective can be a great way to learn how to relax and stay calm.....so if nething, we r getting a crash course as it were in how to do that : )
Helpful - 0
Avatar universal
I am almost 3 weeks post op.  An. OT came to see me in hospital and told me that each day I should take 1-2 hours and be by myself with no activity no noise don't even read etc.  I knew she was serious when she returned next day to see if I had thought about how it was going to do this.  At first you thought it was absurb but after reading this post and experiencing some of these things I am taking her words more to heart.  I have a tablet with prayer requests from others and I do try to use some of that quiet time praying for them which helps me as a way to give back to others on non, - physical ways
Helpful - 0
3177763 tn?1344537046
I soooo totally understand! Not just words, touching, chewing it's like everything is jumping up and down on my last nerve and it's strung so tight that it's frayed and ready to snap! Lol! Like my head and body are going to explode, there is an electrical current humming through me and my ears, OMG like fingernails on a chalkboard is right! I can't stand to hear someone chew their food or gum, EVER! You are not alone sweetie and it is a miserable feeling that's for sure! I feel horrible  that I am hypersensitive and feel like that and I have to just go take breaks sometimes... that way I can continue to hang in there like hair in a biscuit, as a mom I feel like I have to just to keep from unfairly taking out my oversensitivity or hypersensitivity out on my family when they have every right to have fun playing around with each other, or watch tv, or whatever it is that I need my break from! :) I go and sit in a nice warm bath in a candlelit bathroom that is very quite and just relax until I am able to handle the sensory input. (especially if it's in the evenings! ;) During the day I find other quite places, the bedroom with a fan going for white noise, or other quite place to just decompress for a minute or more. I have found creative ways to take my breaks too! Little things so I don't hurt their feelings when I go take a short break away for a few minutes or however long I may need.... Hope this helps, it helps me to know I'm not alone! Gotta go for tonight, my flashing lights in my eyes are back! Praying for you!  
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Avatar universal
Good idea
Helpful - 0
1996562 tn?1330337839
  I have these days too :\ I feel bad for my family because they think I'm just making things worse by isolating myself in my room, but really i just want to be left alone.
  After going to the Conquer Chiari walk and meeting/speaking with some new people, I did learn something interesting that may explain some of our good days and bad ones. Atmospheric pressure... you can track it on weather.com - after you type in your zip code, on the left there's a section called "forecasts" and they have one for aches and pains.
  This is new to me so I'm going to check it out every day and see if it relates to how I actually feel. I mean I knew temp and humidity affects me but I didn't even know about atmospheric pressure (probably because I was sleeping in class ^_^ )
Helpful - 0
1823499 tn?1370090289
I feel ya sister. The noise is def a trigger for me. I have issues listening to my boys. And being touched. Thank god its not just me! I even somedays have to leave the room when people are chewing, lol. U r not alone, hang in there,Dana ;)
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Hi...yes, never heard it put quite that way, but most deff,....I had it more when I had no idea about my dx and was pushing myself to get things done and was over tired I noticed it more....but I think we all can be hyper sensitive not only to noise but it is an over load of info or stimulation by the way of just someone wanting our attention, when the TV is on and another convo in the next room it can just all be too much,,...
Helpful - 0
Avatar universal
Don't apologize. I have had a rough few and I completely understand where you are coming from. My family just wants to hang out with me and interact with me and I just want quiet!!!! and not to have someone climbing on me. It makes me feel like a bad mom too.

You're not alone, and I'm not either. Just breathe and don't strangle anyone. lol
Helpful - 0
3057101 tn?1360374109
It happends to me too.. i just want to be left alone, in.total silence and darkness.its horrible, and i ferl like a bad mom. my son is a talker and i cant stand it sometimes....  like nails on chalkboard!!! it breaks my heart that  i feel.that way, even though it haa nothing to d with sons and hubby. is just this damn evil , taken our mind and body as host.  i apoligize if i went there..its been a hard day....
Helpful - 0
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