I had a spinal tap for suspicion of Meningitis in 2002. Had a spinal leak that resulted in 2 blood patches approx 2 weeks apart. Never had headaches before tap. Now I have headaches an average of 2 to 3 times a week. MRI done in Jan 09 showed 5mm chiari malformation. My MD never told me about this. I have an appointment with a neurologist in 4 weeks. Is there anything else that I need to do at this point? I was just in the ER for severe head pain and dehydration. Could there be any signifigance with my past tap and having this happen and having the headaches?
Chiari is a congenital condition...and can remain mostly asymptomatic for most of a chiarians life......or they can have symptoms that cycle so it doesn't seem like a condition that needs attention.
Having a spinal tap could have made urs symptomatic in that the fluid could have been drawn too fast and that can pull the tonsils down.
Most NS and NL may say 5 mm is incidential and can't cause the symptoms u r having.....
U will need to locate a dr that is a chiari specialist...please see our list here on the forum.
We also have Health Pages that explain chiari and several other related conditions like syringomyelia, tethered cord, and Ehlers-Danlos.
Plus there is a page for activities to avoid to lessen the possibility of the activity resulting in the progression of the condition.
So, u most likely had chiari since birth...but the LP may have triggered some progression.
If u need help finding the Health pages or threads I mentioned...let me know.
what are the chances that it could have progressed in the recent months? My headaches and neck "strain" are more frequent. I looked on the thread for providers and didnt really see any in the Washington DC area, unless I totally skipped over them. This site is very helpful.... Thanks for your help
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