I cant find the place to post my surgery date. I met with my 2nd Opinion doctor yesterday, and THANK GOD I did, He is amazing, and really knows Chiari inside and out. We were clearly impressed, and scheduled the surgery for May 9th. in Ft. Smith, Arkansas.
We came from Memphis, TN, where the NS had said he didn't want to do a CINE study because he would know what he needed to know once he got in there***(made me scared). I am not a car, you can't just pop the hood and have a look and then go sort out the right tools.
So we cross-referenced list of specialists, and found Dr. Anthony Capocelli who trained at the Chiari Institute in NY and he is practicing in Arkansas of all places. He ordered a CINE flow study, cervical, thoracic, and lumbar MRIs, and neck and back x-rays. I am really fortunate that I have no syrinx or tether.
But the urgency for the surgery is that there is no CSF moving to the back of my head at all, and a small amount getting to the front, just enough to keep me from being paralyzed. My symptoms have progressed exponentially over the past two months, and he said that we need to decompress before I get to the place of irreversable damage. I currently have a small throat infection, Strep, and need to get past it before surgery.
It makes a difference. Selma and Pam, you were right! The specialist matters! He knew every technique and explained why he likes this or that and what studies have been done, and what is all means for me. No doctor has ever been so thorough with me. I will update as I know more. Thanks to this community for helping me find the right direction to look. I feel really blessed.