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Syringomyelia pain
by twohassles43, Aug 10, 2008 01:58AM
I have been diagnosed with Syringomyelia about 8 months ago. I seen 4 different doctors and never got any answers on what to do next from any of them. I am not sure if i have Chairi or not? One doctor referred me to another because he said my brain MRI showed abnormalities. Then the next doctor said my brain MRI is "unremarkable" and he thought i was too anxious about my Syringomyelia. Another doctor (spine specialist) told me i do have a Syrinx, but "its a small syrinx and nothing to worry about"? So i am too the point of doing what i can to deal with this on my own.
I see a pain doctor, and my pain is still persistent every minute of every day. On top of Syringomyelia they tell me i have herniated discs, spondylosis, arthritis, etc etc..For some reason, i feel as if most of my pain is do the Syrinx. The pain is a general, weak, shakiness, all over my upper back and upper arm area. As the day progressess my back feels weeker and weeker. I sometimes feel like i have rubberbands around my biceps.
Can anyone give any input on Syringomyelia WITHOUT Chiari Malformation?? Most everything i read is Chiari related? Should i be seeking the help of yet another doctor, for the Syringomyelia? And what do most of you do for pain relief? Thanks so much, any input would be very appreciated.
I see a pain doctor, and my pain is still persistent every minute of every day. On top of Syringomyelia they tell me i have herniated discs, spondylosis, arthritis, etc etc..For some reason, i feel as if most of my pain is do the Syrinx. The pain is a general, weak, shakiness, all over my upper back and upper arm area. As the day progressess my back feels weeker and weeker. I sometimes feel like i have rubberbands around my biceps.
Can anyone give any input on Syringomyelia WITHOUT Chiari Malformation?? Most everything i read is Chiari related? Should i be seeking the help of yet another doctor, for the Syringomyelia? And what do most of you do for pain relief? Thanks so much, any input would be very appreciated.
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You mention that you've seen at least three doctors, right? How many were neurologists or neurosurgeons? The main thing you need to do is find a good neurologist or neurosurgeon. Sounds like the doctors you've seen can't get together on things. Keep looking till you find one that listens - one good doctor beats all the bad doctors when it comes to your health. Most other doctors have barely heard of Chiari or Syringomyelia . My personal family doctor told me that he had taken one class in Chiari during medical school, He finds me to be an interesting patient, because I am a "challenge" to him and he's going to have to read up on it.
Good luck.