Chiari Malformation Community
Syringomyelia
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Syringomyelia

What are your guys' experiences with Syringomyelia? I just found out that I have a syrinx that is pretty large that extends from my upper spine all the way to in between my shoulder blades. It was terrifying to see my MRI compared to the pictures I see online. The syrinx's on google and wikipedia are so small comparatively. This is a terrifying thing to see.
Tags: syringomyelia, spine, MRI, brain, Chiari, chiar malformation, Syrinx, chiari I
Blank
999891_tn?1407279676
A syrinx causes problems with the feeling on the skin of your shoulders, chest, back, arms and hands.
For me it is like having some kind of barrier or covering in the affected area, like wearing surgical gloves and trying to feel things through them if that makes sense. I also have problems telling the difference between hot and cold.
Burning like pain, pins & needles &  fasciculations (involuntary muscle twitching) cause a lot of discomfort.
It will depend on the length, the spinal segments that are involved as much as the with of the Syrinx. Each segment has spinal nerve root's that supply different areas of the body,

http://en.wikipedia.org/wiki/Dermatome_(anatomy)
5 Comments Post a Comment
Blank
999891_tn?1407279676
A syrinx causes problems with the feeling on the skin of your shoulders, chest, back, arms and hands.
For me it is like having some kind of barrier or covering in the affected area, like wearing surgical gloves and trying to feel things through them if that makes sense. I also have problems telling the difference between hot and cold.
Burning like pain, pins & needles &  fasciculations (involuntary muscle twitching) cause a lot of discomfort.
It will depend on the length, the spinal segments that are involved as much as the with of the Syrinx. Each segment has spinal nerve root's that supply different areas of the body,

http://en.wikipedia.org/wiki/Dermatome_(anatomy)
Blank
1589097_tn?1343436712
I too, have a syrinx, if you look in my profile I have several pictures, I was told because mine is so wide and expanding my spinal cord it is severe.  Its c6-t2 but Very wide. I dont suffer alot of pain, I occasionally get tingling, and have lost some sensation in my hands and feet (not alot) and I have very hyper reflexes..and no matter where you hit me on my leg/thigh  I have a reflex.  Because of my syrinx being so large, I need surgery to prevent further nerve damage.. Many say because I dont suffer, I already have bad nerve damage and thats why I dont feel things I should :(
It is frightning when you research sometimes!
Mazie :)
Blank
2118977_tn?1343271897
Check out mine i have a huge one to. I suffer alot of  issues. Do u have chiari malformation? If ur unsure i would get an MRI and find out! Good luck to u!
Blank
3219959_tn?1346010119
I do have a chiari malformation. I am getting decompression surgery on Oct. 9th
Blank
3219959_tn?1346010119
Those are pretty much my symptoms as well.
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
1755089_tn?1376057155
Blank
drewlevas uploaded new photos
1 hr ago
620923_tn?1405964489
Blank
selmaS September is CHIARI awarene... Comment
22 hrs ago
Avatar_f_tn
Blank
lorjojack joined this community
Welcome them!
Sep 18
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
979826_tn?1389039958
Blank
soccero
germantown, MD
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
Avatar_m_tn
Blank
Ball123
7489440_tn?1392096009
Blank
kwalker0004
Pocomoke, MD
Chiari Malformation Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
979826_tn?1389039958
Blank
soccero
germantown, MD
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
Avatar_m_tn
Blank
Ball123
7489440_tn?1392096009
Blank
kwalker0004
Pocomoke, MD