TOPIC of the MONTH September ~~~ Chiari Awareness

[selmaS]

Hi ALL I hope you are wearing your purple everyday this month as it is Chiari awareness month....

Tell us in this thread what you are doing to help spread awareness for this condition....walks are scheduled and even the Canadian side of Niagara Falls was purple Sept 7th.....so cool !

There is a Brain Freeze Challenge going on FB....but I will challenge all of you to share with a friend here on MedHelp that is in a different forum, about Chiari....

[selmaS]

  I posted about the MH newsletter....you should as a member of MedHelp get one...there will be an article in it that you all will want to see.

[Elisaandbucky]

Thank you, Selma for the information on the July conference. I will plan for it.

Frankie, please tell me what MH newsletter is. I love to read. I am also doing the walk on September 20 in my hometown since there isn't one organized where I live now. I am really looking forward to meeting so many people that will feel the way I do!

[selmaS]

  Go Frankie !!  Fantastic... !!!

Watch for the MH newsletter.....

[frankie_rush]

Organizing a walk for Sept 20, 2014

[selmaS]

They tend to hold them in July each yr, I will PM you info on next yrs when available....

[Elisaandbucky]

I would be very interested in learning about conferences. What a wonderful opportunity.

[selmaS]

  Looking for more Chiari awareness ideas...what are you doing?

[selmaS]

  Those are great ideas !!

Wish I had a walk closer....there use to be one back when I first had surgery and could not go, now I would like to and there isn't one...Philly is too far to go...but if push comes to shove I just may beg someone to take me...lol...

I went to a Chiari Conference and it is an experience to actually meet face to face with others that understand what we are going thru.

[Elisaandbucky]

A wreath of purple flowers, with a big purple bow, greets everyone who comes to my front door. Purple ribbons are my favorite things to give in order to raise the public awareness of Chiari Malformation. I gave a purple ribbon to the Federal Express lady delivering tickets to the local symphony that my husband ordered, and my son put one on my mailbox for the mail lady. I am going to visit a local business on a busy street and ask the building manager to turn their fountain water purple. I gave ribbons I had made to my son to give to his three teachers and friends

The thing I am most passionate about is the Conquer Chiari Walk Across America. I will walk with my father and sister in Philadelphia on September 20th for the Walk. Being together in one place with so many kindred souls will be magical!