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Taking a personal poll

How many people on here have or know some one who has chiari, and their children have it?

I my self have C.M.. and S.M. and have 2 children. Neither seem to have symptoms and are healthy. But was seeing what our community's "numbers" look like. Thanks.
6 Responses
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Avatar universal
I also have 3 sisters, which none present any "issues"
Helpful - 0
2063048 tn?1641389945
I have CM and SM, as well as scoliosis. I have an aunt currently being tested for CM. I have 3 children, 2 with symptoms of CM but not tested. All of my children have mild scoliosis, as do my siblings.
Helpful - 0
4816750 tn?1368804670
I have it dx'd may 2012
Helpful - 0
2120085 tn?1344765910
I actually suspect my.mother has it but she wont go get checked lol she doesnt like doctors.. but the symptoms she tells me just mirror my own
Helpful - 0
3112631 tn?1356653557
My sister and I both have Chiari and we suspect that my sister's daughter probably has it too. I also think that our father probably has undiagnosed Chiari -- he has complained of headaches lasting several weeks for as long as I can remember, and has always had neck pressure/pain too.
Helpful - 0
1500699 tn?1363393598
I know that my grandfather had "water on his brain" and had a shunt.  I do not know if he had ever been diagnosed with chiari.  I have chiari and syringomyelia.  I think that one of my children probably has chiari but I have not had them tested.
Helpful - 0
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