Aa
A
A
Close
1685030 tn?1305550704
Test Results Confusing
So I got a copy of the report from my MRI/MRA saturday. I see the Neurologist Wednesday.  They noted "Cerebellar tonsils are situated approximately 5mm below the level of the foramen magnum" the MRI from April that caused the neurologist to order this one from Saturday showed 4mm below.  Anyway my concern is that at the end of the report it said "Stable low lying cerebellar tonsils/tonsillar ectopia, without evidence for a Chiari one malformation"...I thought 5mm was?  I am having many if not close to all of the symptoms?  What do I say to my neurologist Wednesday?
Cancel
4 Answers
Page 1 of 1
Avatar universal
I'd love to know the answer to that to because I'm in a similar scenario.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1685030 tn?1305550704
My husband told me I was borrowing trouble by getting the radiologist report prior to going to the neurologist but I feel like had I not got my hands on these I would have fallen through the cracks AGAIN.  I've been fighting this battle for over 4 1/2years.  I had given up hope and then this Dr. brought it to my attention when he saw the 4mm notes on the MRI of my neck, which was done to see if pinched nerve was causing the numbness in my arms.  I mean from what I see 5mm can cause problems for some and then others have no symptoms with 10mm....I would love to hear from anyone with 5mm that was given the diagnosis of Chiari 1
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248


  Hi...low lying tonsils can result from an outside force, such as a fall, it can be acquired...whereas chiari is the malformation of the skull...not the size of the herniation even tho many drs will classify a herniation of 5mm of larger chiari...u will have chiari symptoms, but, it does not mean the herniation is a result of the cerebellum being too small.

  Have u had a fall or been in a MVA in the last few yrs?

  Once u get to a true chiari specialist u will get more details and info.....Please keep us posted.

   "selma"
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
Most doctors will not diagnose Chiari without at least a 7mm herniation.  However, it's not the amount of herniation, but the blockage of the CSF (cerebrospinal fluid) that causes the symptoms.  If the CSF is being blocked, you're going to have increased intercranial pressure resulting in the classic Chiari symptoms.  

As far as getting 4mm on one reading and 5mm on the next, there's usually a +/- 2mm margin of error given due to slight differences in measurement.  

I would recommend that you look at the website for the Chiari Institute in New York.  They have research there about "Chiari 0".  It's relatively new research, but they are finding people that are symptomatic without the same extent of cerebellar herniation that they usually diagnose Chiari Malformation with.  In the case of Chiari 0, the cerebellar tonsils are typically low-lying, but still cause blockage of the CSF.  Print the research information and take it along with you.  I've had more than a few doctors and radiologists I have presented this to that told me they had never heard of this and learned alot.  If the doctor isn't willing to read it and learn, it's not worth you being their patient either.

Best of luck to you!

Jackie
nurse with Chiari 1
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Recent Activity
Avatar universal
Blank
5665 commented on Think LYRICA was culp...
Jul 21
620923 tn?1452919248
Blank
soccero, and selmaS commented on soccero's status
Jul 11
979826 tn?1389039958
Blank
soccero feeling absolutely horrible ;( Comment
Jul 09
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
1306714 tn?1327260680
Blank
linnielou232
muskegon, MI
7530528 tn?1428275172
Blank
AKC_75
TX
Avatar f tn
Blank
KerriC1
979826 tn?1389039958
Blank
soccero
germantown, MD
Avatar f tn
Blank
lasel22
Chiari Malformation Community Resources
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
1306714 tn?1327260680
Blank
linnielou232
muskegon, MI
7530528 tn?1428275172
Blank
AKC_75
TX
Avatar f tn
Blank
KerriC1
979826 tn?1389039958
Blank
soccero
germantown, MD
Avatar f tn
Blank
lasel22