Tics anyone?

[IamMel]

Here we go again, not only have I been losing my speech, left and right legs giving out on a continous basis, right arm not working and painful, neck/shoulder aches ----Today I started to get severe facial ticks, to the point where my face would lock up with my mouth and nose twisted for a half hour at a time.  (which felt like knifes cut my face)  It started with the blinking, then the nose twitching, then the mouth/nose twisting, then the perma smile locked in (like the guy on the vigra comercials) I couldn't find any info conecting this to Chiari.  My nuerologist finaly said he was cluess about me (that I defied all the rules of common medical practice) and referred me to Mayo Clinic in Minnesota.  I guess there is one neursurgeon there that specializes in Chiari.  I have to go through the whole rigamaro first again I guess.  I finally got to see my brain too!  My husband said it looked like the Turkey he just shot last weekend.  We try to keep a sense of humor.  The neuro said it was 5.2, but the spinal bones around it looked good, whatever that means.  Any comments would be appreciated.  I feel bad for everybody elese out there going through this.  Thanks Selma for answering all of our questions.  To anybody reading this the best thing I have found to do is to pray and have a sense of humor,  It has been the only thing that has helped my family cope with my problems and make me feel better.

[selmaS]

  Hi and welcome to the Chiari forum.

Many with Chiari do get Bells Palsy like issues, but I am not sure it is exactly the same with the Chiari DX mixed in...May I ask, do u also have a DX of Chiari?....If so, what other symptoms have u had?

[Richie62]

You Might Want To Look Online  For Bells Palsy, There Are Women In My Family , Young & Middle Age Who've Had It

               Sincerly Richie
                         ***@****

[Devin215]

Hello,
I get facial spasms too in my chin and eyes.....I happens randomly but I also get numbness on the tip of my nose and lips....I wonder if that has anything to do with what we have.... WEIRD..

[ThePeachy1]

Mel- wow, so glad you posted this, so sorry you went thru it,  about 10 weeks ago I was at work and bam, left eye went out, went shut and my face went thru a period of sagging and smiles and twitching.  everyone thought I was having a stroke, ran to the ER nope no stroke, and no answers ( just found out 9mm last monday).  I hadn't seen any of that in particular mentioned on here so I didnt' bring it up, but when I saw yours it was like wow, yeah, me too,  and then Selma thanks so much that makes perfect sense. You guys are so helpful.

[IamMel]

Thanks so much Selma, once again you have totaly given me some relief.  I don't have my next appointment until June 9th.  I'll keep you posted.
Mel

[selmaS]

Hi Mel......I would venture to say u r having some compression on ur 6th nerve....I believe that is the facial nerve....it is also possible to have another condition with chiari....

I get weird things after I yawn like....my one eyelid closes and i have no control.I also get a weird twing in my neck it feels like the muscle is in a spasm.

So I am sure ur issue can be from a nerve being inpinged.

I am glad u still have ur sense of humor.And u r right...this site is the best place to get support.

Please keep us posted as to what this issue of urs is....

"selma"