BUMPING up for some fun.....lol..
...When a NS tells you "you know, if you wait 15 or 20 years, your brain will shrink and you probably won't need surgery". Yeah, wrong doc!!
this is not related to chiari but.............
my GP didn't know they were still manufacturing Armour thyroid and she didn't know how to dose it.. SO I had to tell her what the conversion from synthroid to armour would be.
AND.... I also had to literally demand to be referred to a neurologist after going to PT for 6 weeks with no improvement.
When ur dr tells u "I can tell u don't trust me and that u don't like me so I will send u to someone else"..
don't you love it !!! ive been to 37 doctors. all questions unanswered
my dr told me i have chari but said its prolly not bad and said B12 shots would fix all my porblems.
and then another dr after that told me he had no idea what chiari was but the other dr had to be wrong about the B12, thats just what drs say when they want you to get tons of shots from there office...instead of sending you to a dr who actually knows.
lol i also got the oh yeah i know all about it but your the first ive seen.
this is also after my mri was misplaced form my file. all by the B12 dr.
When they tell you "Yes, I'm an expert in Chiari everyone here knows about it", and then you ask them how many Chiari patients they've had and they say "Well, you're my first".
When they immedeately excuse themselves after you tell them you have Chiari. - This doc actually excused himself to Look Up Chiari in his medical book.
When all your symptoms are fibormyalgia, Menier's, and anxiety related - because after all you've already had a decompression. Oh yes, and like Lydelia said - they look at you like you're crazy.
when they tell you the symptoms you're having are caused by stress not related to chiari at all and look at you like your stupid for getting upset and arguing with them
when they tell you that chiari cannot possibly be causing the symptoms you are having. and then look at you like you must be crazy.
...or that it is asymptomatic until a certain age...bull, just bcuz that is when they finally dx it doesn't mean that is when it started to present with symptoms....ugh
when they say "Chiari never affects adults" (yes this was said to me)
When they say charrey malformation hmm im not sure lol we spell it better then them!