Chiari Malformation Community
WEDNESDAY'S WEIGHT IN WORKSHOP~~
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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620923_tn?1405964489

  Yes I have my DD has it, I have asked my DH to get some....mayb after my next visit to her place I can get her to make it and he will like it and buy some, he said it was pricey,....

I cut back on sugar, and breads and my fav pasta...I am not huge into dairy... yogurt  in the AM with grapenuts and freshfruit mixed in....

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tell it that it may be a bit pricey, but it expands a lot when it cooks, and is much more filling than things such like rice, so it goes a lot further. :)
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1968463_tn?1374761413
UGH...here I am weighing in....135...
my norm is 108 at the most.  Just cant seem to shake the weight...and I have given up trying until after surgery. I want to be able to exercise and I cannot right now so I am jsut making sure that I am eating healthy. However tonight is pot roast, rice gravy, honey glazed carrots, rosemary potatoes, and homemade bread. I am still doing my sitting exercises though...just so I am getting something. I cannot wait to feel better and be able to do a little waking around the neighborhood...I love out area...it is full of beautiful oak trees and pecan trees and sweet people and children and dogs playing. Horses down the road and a beautiful park that my kids love to walk to. OPh....I can hear it calling my name :)
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620923_tn?1405964489

  I am sure if I can get him to try it that it may be easier to get him to buy it....it is a yr now that I am trying....and I won't stop...lol....

I love the outside too, and being outside can be diff at times on uneven places....this was always my downfall...and I mean fall...so, I am still a tad cautious with grassy areas , but so love being outside....I also look forward to my DS's pool again this summer...more exercise....yeah.
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mmm...outside is lovely....but it is raining right now for me....

I've had a pretty good day as far as eating goes....oatmeal, stuffed peppers, nuts and banana....some fruit salad. I havent even had chocolate yet....which is a miracle in itself.

I was able to exercise today.....at my boxing class....no pain at all! I was thrilled....I almost stayed for an extra class but decided to play it safe. I was sad as I realized that after Tuesday I probably wont be able to go back there for a couple months.... :( I am really really hoping recovery goes fast.

I have been trying to think of post op exercise that I will be able to do pretty quickly after surgery (not immediately, im not that irrational.)
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620923_tn?1405964489

  One thing I will warn, do not rush ur recovery, u may feel great post op, but most do have a recurring of symptoms as the nerves wake up...it can get depressing and it feels like back sliding...but, with time and patience u will see it is short lived.

I pray all goes well and I will post a prayer thread for u on the 14th for the 15th when u r having surgery...all the best  to u.
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I hope you are right....I have a tendency to be impatient....and hard on myself. I have been thinking about that, about the pain that must be had in order to feel better.
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620923_tn?1405964489

  It  is not just the pain, it is the impatience to get back to a different life...and sometimes in haste it creates set backs....allow ur body to heal, allow ur self the time it takes even if u r feeling good, do not over do it....go slowly.
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620923_tn?1405964489

  Hi All just checking how we r doing with the exercises and activities and diet?....

  Neone just getting started?

  
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1755089_tn?1376057155
It's raining outside. I have a lot of house work to do. I'm just in pain and tired right now, and I gainned weight even if I didn't change my eating!

But I'm keeping my smile :)

Good week to every one. We just need to do our best I guess.
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620923_tn?1405964489

  OI have had weight gains and losses with out changing my routine or diet....so I know it is the Hashimotos it can switch  from hyper to hypo....so, u do have to keep a close eye on it and apparently I had it for yrs b4 I was dx'd....do u also have a thyroid issue?
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1755089_tn?1376057155
My doctor wont do any more than regular test :(
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620923_tn?1405964489

  Y not? did he say?....my Dr did not see the need and I copied info I got from the Thyroid forum here and he agreed to do it and saw a need to medicate me as well afterward.....
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620923_tn?1405964489

  Hi all...so is this hot weather helping or hurting with ur exercise plans?
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2193242_tn?1338398430
5'10 185 lbs need to lose 20 lbs.  Need to wait a little longer I think. but i am interested.
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2193242_tn?1338398430
Looked like i jumped the gun. Not the program I need sorry everyone and good luck, wishing you all the best. :)
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620923_tn?1405964489

  Do start at the top of this thread and work ur way slowly thru the exercises once u r ready, I would say u have time...right now u should be walking, and doing ur neck exercises to prevent scar tissue and the muscles from getting tight.

Deff wait till u r 4 or 5 months post op b4 u start ne of these, Or ur post op MRI when u see ur NS see if the sitting  exercises may be a place to start.
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620923_tn?1405964489

  Hi all...neone doing the exercises?....adding ne new ones? like taking walks or swimming?
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1759188_tn?1324681908
  im going to the gym every day, watching what i eat  and holding steady at 203 lbs
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620923_tn?1405964489

  May I ask what type of routine u have at the gym?

And have u been checked for a thyroid issue....many with chiari do have it., and it can affect weight gain and loss issues.
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1755089_tn?1376057155
Starting septembre they will be giving aquatic for elders at our local health center. I spoke with the administrator and she said that even if I'm only in my thirty's I'll be ok to join :)
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620923_tn?1405964489

  I went to aqua therapy yrs ago for atrophied muscles in my right leg, and it is really fun, only thing is the first time u go to get out u feel like u can not lift ur legs bcuz of the heat of the water...it is an odd feeling and u do adjust to it, but that is one of my memories I will not forget and no one warned me ahead of time it would happen...so be warned....lol...
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1755089_tn?1376057155
Thanks I'm happy that you are warning me :)
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haha! I find that to me amusing - I have been kind of interested in aquatics for a while - not that I'll be able to do it for a while - what all does it entail?

My scale hit 109 lbs! woohoo! XD That means I have lost approximately (my scale was broken..so Im not sure what my original weight was haha) 25 lbs since the end of august, and approx 10-15lbs the year before that!!!

I hope it stays that way since I am now so inactive...I've got about 10-20 lbs more to loose to be at a healthy weight for my height, frame, age, BMI, activity level and bone mass! Im getting very close, just hope it stays...

Note: Yes, I should be somewhere between 90-100 lbs...I am extremely petite....extremely. This is not a obsession with loosing weight or a need to be a size 0. I am just small - in fact people often nick name me things such as "little one" "small" "shrimp" and fun sized"
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620923_tn?1405964489

  It is a strange sensation at the time I did not have my Chiari dx, knowing u have it as well as other issues, u may think something is wrong...when it is not, this happens to everyone....lol...again a very weird sensation.
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1755089_tn?1376057155
Well I'll be wooping when my scale hit 190 lbs! I havent been this size since 10 th grade! Even if I'm short 5 feet, I'm muscular build and big boned. The nutritionist told me that 155 lbs would be perfect! I have a lot of work to get there, since I'm over 200 lbs :(
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Its amazing how each and everyone of us is so unique, and perfect in our own way - no one elses perfect with be someone elses perfect - and everyone is beautiful regardless of how their built. Sometimes that justs blows my mind - everyone is perfect in who they are.
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1755089_tn?1376057155
You're perfectly right. Everyone is perfect in theire verry own way.
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Well I definitely misunderstood something I read somewhere...I thought my being underweight was a Chiari symptom, but if people are trying to lose weight it must be different for everyone. I thought I finally had an explanation as to why I am 5'5" and only about 106-108lbs soaking wet. I am not that active, I don't exercise, it hurts to move and I have no energy. The only 'exercise' I get is chasing my little ones around and the once maybe twice a week I run errands, if that. Some weeks I don't do anything at all and just have my hubby pick stuff up that we need on his way home from work. I am disheartened now because I thought that maybe I would actually gain some weight post-op. I think something just got mixed up in my head, which isn't hard to do for me; I can't remember a time when I wasn't easily confused. Sorry I just realized I was rambling off on random stuff so I'll just stop typing now lol.
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620923_tn?1405964489

  Hi...well it still may many with chiari also have an auto immune thyroid condition called Hashimoto's, u can be hyper or hypo or switch btwn the 2.

U could very well be hyper...and y u do not gain...I have gone btwn the 2, lost weight and was "skinny" and then was considered "fat"...all on the same diet and activity levels and my blood labs showed normal for thyroid function, u really need a full lab work up to include a thyroid ultra sound, and  in addition to the TSH labs u need free T3 and free T4 and TPO antibodies....

But this can account for ur weight or lack of....
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1759188_tn?1324681908
i had thyroid cancer and it was removed. i am on synthroid.  i am in severe pain in my back  so i am limited at the gym. i walk for 30 - 40 min  i do some leg exercise some stomach  and the bike  for 2 miles.   i have 2 eggs and 2 pcs of wheat toast  for breakfast,  a turkey or low cal meat for lunch and a small portion for dinner, in between i have fruit or a yogurt.   i see inches dropping but not weight.
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1759188_tn?1324681908
  i have to smile when i read your note. last year was the first time i put on a bathing suit in 20 yrs, and it was for my grandaughter. she is 2 yrs old and she informed her mother the other day i was comming to get her so we could go swimming  your right there is alot of material  lol
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620923_tn?1405964489

  Well inches r more important then weight as muscle is heavier then fat...so if u work out u r building muscle, so the # on the scale may not be moving, but if u r getting toned and losing inches that is fantastic : )
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620923_tn?1405964489

  How is everyone this week, are we still moving?
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620923_tn?1405964489

  Hi All I know as the warn weather creeps in we drift further from our computers, so I am hoping u all u busy swimming and walking and doing safe activities....
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620923_tn?1405964489

  I am headed out to swim...and bumping this for a newbie : )
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620923_tn?1405964489

  Bumping up
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1759188_tn?1324681908
  whoo hoo i got to 201 lbs !!!!   no more 203 platue   i got the cortizone shot in my lower back  and it helped so i stepped up me game at the gym and lost 2lbs
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620923_tn?1405964489

Congratulations !!!

  I am at a plateau as well....and hoping to lose weight this summer....

  So glad u r able to work out at a gym and get those results : )
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1664208_tn?1332786550
I hate to admit since last July I have went from a size 3 to a 13! I have pics posted where I am mid weight. I started with 110-115 to 140! I almost fell off the scales. They have tested all my thyroids & it came up just a little low. I do try to walk but since I have started having so many issues with my legs & feet I am unable to walk alot. Ive tried doing small sit ups didnt work due to the pulling of the head. Its all in my butt,thighs & breast., I dont have belly fat. I eat really healthy. Any ideas?
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620923_tn?1405964489

  May I ask, r the thyroid reg thyroid testing or for an auto immune thyroid issue?...Just testing TSH may appear "normal"...ask about the free T3 and free T4 and TPO antibodies along with TSH....

U may also ask about having ut thyroid ultrasound done, as it may show nodules indicating an autoimmune thyroid condition known as Hashimoto's thyroiditis, many of us have it and we can go btwn being hyper to hypo with very quick weight gains...trust me I know as I do have it....

Sit ups r really no good...do try walking in a pool as u have the resistance of the water u r walking against.,..and u can try a recumbent bike....

I also know how u feel , I went from people at work calling me skinny to being called fat...ugh...(nasty customer) but regardless,...it was a fast change in weight and no change in diet or amount of activity I had at the time, so I know now even with my activity level being lowered it is not the reason for not being able to drop weight....my thyroid is.....
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1759188_tn?1324681908
     i was wondering if that the depresion we all suffer from chiari  and the wonderfull life we were delt has anything to do with  not beeing able to loose this weight. i know we are all limited to what we can do,  ut depresion can cause weight gain
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620923_tn?1405964489

  I really do not feel depressed to that degree....I am happy most of the time, and if I were to sit and focus on all the things I could not and can not do, then mayb I would be more depressed...but, once I found a Dr and a dx I was ecstatic....the worst was not knowing and my weight was up and down....I am heavier now ....

So for me, that does not follow that logic, for many others here it may....something to consider, but there r so many that do not feel depressed except about the medical profession listening.,..???
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1759188_tn?1324681908
  i stepped up my game at the gym and  i am 199 lbs now
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620923_tn?1405964489

  Fabulous!!! Keep up the great work, I have not been brave to get on a scale, but I have been in my sisters pool jogging around....and I am hoping it will help me start to lose.
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620923_tn?1405964489

   Bump
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Im in
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620923_tn?1405964489

  Hi and welcome to the Chiari forum.

This is an older thread and we do have a new one started...and it is posted in the Chiari forum on Wednesday's.....

May I ask when u were dx'd with chiari and what limitations u have with exercise that u may need help with in losing weight?
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