Chiari Malformation Community
Website of interest
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Website of interest

I stumbled across a website that may be of interest to those of us having surgery. It was linked to the hosptial and it is called CaringBridges.org.  You can set up a website for yourself or loved one, that is in the hosptial or having surgery. It lets you post their story, a photo, links to info, and lets them send brief messages. It seems like it will be an easy way to update people - they can check the website for progress notes.
the other feature that is nice is that it is NOT a searchable website. You must know the persons website name in order to access it and there are increased levels of privacy beyond that such as having to type in a password that is given out by the author of the site.
I hadn't seen this before, so if I"m repeating info here, apologize in advance. It just seems like such a great way to notify and update a number of people at once, instead of being on the phone constantly.

Hope it helps - If anyone wants to check on my son's site, just let me know. I don't want to post his name on here because of my job (probation & parole) for privacy reasons. thanks, and hope this helps!
sherimom
Related Discussions
2 Comments Post a Comment
Blank
Avatar_f_tn
HI Sherimom,
I am so glad to see you posting. I would like to be able to check on your son's progress. Let me know what is going on.
Chadry
Blank
707040_tn?1337319979
I will definately forward the info to you.....sorry I havent' written much, just been so so busy. I'm sure everyone is this time of year.
I will email as soon as I can. Hope you're doing well...
sherimom
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
Avatar_f_tn
Blank
Tinamarie2015 commented on Take Charge of Your H...
12 hrs ago
999794_tn?1427348463
Blank
Heather2414 uploaded new photos
Mar 27
Avatar_f_tn
Blank
brendahayes4 commented on When Your Cold Is Not...
Mar 27
Top Neurology Answerers
620923_tn?1426651955
Blank
selmaS
Allentown, PA
7530528_tn?1415842914
Blank
AKC_75
TX
Avatar_m_tn
Blank
Ball123
9432311_tn?1424647329
Blank
Elisaandbucky
Charlotte, NC
979826_tn?1389039958
Blank
soccero
germantown, MD
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
Chiari Malformation Community Resources
RSS Expert Activity
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1426651955
Blank
selmaS
Allentown, PA
7530528_tn?1415842914
Blank
AKC_75
TX
Avatar_m_tn
Blank
Ball123
9432311_tn?1424647329
Blank
Elisaandbucky
Charlotte, NC
979826_tn?1389039958
Blank
soccero
germantown, MD
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN