Hi Selma! I would like to share Chris Adams F.U.E.L website http://www.thefuelfitness.com/.
This is a man that is a fitness trainer and also raises monies and awareness for chiari! He is true cheerleader of chiarians and is inspired by what we go thru daily to push him to do what he does better! He has a facebook page as well.
Being fed up with everyting I cant do I have been walking on my treadmill daily, now only up to 45 min. and 2 miles. I'm not sure it is doing anything physically yet, but I love how encouraging Chris has been.
I am by no means encouraging anyone to start a work-out routine, but was just so excited that there is a trainer out there that understands chiari. Thought maybe we all could check out his site and encourage him in supporting us!
This is wonderful that he supports Chiari and Chiari research.....what I am concerned about is his type of exercise he offers as he states he believes in resistance training, for those of us with EDS this is not a good way to go...and I appreciate ur sharing this info......
I do feel we can use the Dr on the site here to offer exercises for us, and we can also develop a diet for our individual situations....
Don't get me wrong there r some of us that may be able to participate in some of what he does, and some that would not ....so I just want to caution neone looking at the site to consider if u r newly dx'd wait until u have ruled out all related issues and if u r recently decompressed, wait until u r healed.
I agree Selma! And I do believe he customizes the work outs for each person, as he also trains many non-chiarians. By no means did I mean that I thought everyone should jump on board and start a program. I honestly dont know how Kalyn does what she does, but simply thought how great that he is out there educating others.
well, since I havent been on the treadmill once since the kids hit fall break...and I'm on my way to drink coffee and eat cupcakes...I think I'm up for anything new! I loved Vivas recmd. for Rosemary and Thyme...I got about 4 episodes in before the kids took over! Books would be great, tho I never have the money to buy them, and our small town library is awful! I like movies, but same thing again. And I love to pretend to be Martha Stewart, (my hubby HATES her) but then again, it can get pricey too! HMMMMM.....not sure!
Well with the thyroid issue it is diff to lose weight for many of us, then add EDS and we have restrictions as to what we can do...no resistance with those elastic bands and that is what PT wants us to use....and I am searching for what I can do....
Not that I enjoy exercise, but know I have to move it or lose it.....
I was gaining a lot of weight before the Chiari crash last yr. it was weird, because nothing had changed (activity level or food quantity), & I could not lose it for anything. I thinkmI gained weight just Looking at carbs. I had to buy new clothes, just to wear around the house. It's very frustrating to feel heavy, but I will never be judgmental about it again.
Ive gained 20 pounds in 14 months...thanks to chiari and thyroid(tho, I'm not under dr care for the thyroid yet.). So far, the only thing I can do is walking on the treadmill. I have scaled back what I eat and how much I eat, but nothing seems to make a difference. I wish I had something to contribute on the Wed. thread. Years ago, because of IBS, I went to a no white sugars, flours. Lots of yogurt, almonds, turkey and salmon. I lost 30 pounds. But I gained some back, and now I am heavier than I was when I started. :/
Selma, I'm not sure it is IBS with the more I learn. Started around 2000. I would lose bowel control randomly. I never really got constipated, just always had diarrhea. Dr. told me it was IBS and to change my diet. I ate yogurt by the truck loads as I was so embarrassed at being in my 20s, and messing my pants while out of the house. About 5 years ago I started having problems with my bladder, dr gave me a little blue pill to help me not pee myself. Now I eat and within seconds, I'm in the bathroom with diarrhea...not sure if its thyroid related or not?
nothing has been ruled out. I moved with in weeks of finding out about cm. I finally have a NL name, but have not made the appt. yet. I was also told I had gerd, and told to take prilosec daily....which I dont. I just try to avoid foods I know trigger it, constantly adjusting that....
I wouldnt be surprised if they find syrinx or tethered cord at this point. The research seems convincing enough for the symptoms I have. EDS seems to bring it full circle for me to kind of that "a-ha" moment when everything makes sense. Had someone with EDS do their assessment of me and said to me, have you been checked...adding that to my list of to do.
I may have said this b4 but those with EDS r prone to have hiatal hernias...hence the reflux issues....we also tend to have umbilical cord hernias at birth....during my chiari journey my mom told me I did have the umbilical hernia....but as far as the Drs knew back then it did not indicate nething to them....
And I am told I was always a picky eater...well if after eating something it makes u feel sick, u r not going to want to eat it....lol...even a child knows that much.....
Well I do hope they look at u for all of it as it is not good to have all the worry of what it my be...and the discomfort it brings.....
Do check out the GERD forum here on MedHelp for more tips for managing symptoms -http://www.medhelp.org/forums/GERD-Acid-Reflux/show/333?controller=forums&action=show&id=333&camp=msc
hmmm...I think I just need a good kick in the backside! I was doing so good on the treadmill, and then I had some things come up and havent been back on in weeks....not good for me, especially with the holiday season coming up...and then a wedding to attend the beginning of January...need motivation to get back on and work on those extra pounds that I already have... :/
My goal is to gain weight- healthy weight. Since my last set back with the pseudo, I lost an unhealthy amount. I am up 2 pounds since then! I'm so happy to report! PT starts next Friday, so I'm hoping to add some muscle weight once I feel better!
I must add, I'm not sure how it is to try to lose weight, but I am having a struggle trying to gain it. I have a slew of gastro issues and eating is not a pleasant experience, so mentally, I don't want to. I would imagine trying to lose weight would feel just as frustrating! But I'm happy for my small victory! It only took me 6 months to get here! hahaha but I'm still happy!
I am on probiotics and magnesium. I am actually trying to gain weight because I have gastroparesis and I keep losing it. These past 3 days, I lost the weight I had just gained, but I'm still hopeful that I can do it! I have been pulling out all the stops and doing what I know will benefit me the most. Hopefully, I will be back to my target in no time! :D
I need to lose a few pounds.....I think I mostly need to get back into an exercise routine.
But it seems everytime I think I am doing good enough to try some other medical issue pops up. I am just over 7 months post op PFD, and just ended up taking an unplanned week off work thanks to now my heart rate is getting too high.
I'll see the Cardio Dr next week, then maybe I can try to do the exercises you posted last year.
The probiotics definitely helped put my intestinal tract back in order! The magnesium was for headaches LOL. But multi purposeful! I started the probiotics much after the magnesium so I know it was the probiotics that helped. Gastric emptying study next Tuesday. Hopefully we can find a treatment after! :)
Good luck with the Cardio Dr...have they tested u for POTS? It is related to Chiari and can affect ur heart rate.....???
Let me know when u r ready for those other exercises and I will repost them.
@RheaAnn....I am so glad that u saw benefits from the probiotics....I know it is something we all may need,.....what is the dosage of magnesium u r taking...? I was on one and my Dr upped the dosage.....
Hi all...we are in the middle of all the tasty treats with the holidays...Christmas is next, and then New Years,....I know other Holidays such as Hanukkah , Kwanzaa, may also be celebrated by members and I feel we all overindulge on special treats we have just during this time of year....so since many of us are more sedentary we need to be mindful of our diet and our activities.....
Oh, I need to participate in this! I've been super depressed about how out of control my weight has gotten lately. Last winter, I lost 20 lbs because I noticed my weight had gotten out of hand around this time as well. Now I'm almost back to where I started. I keep telling myself I'm going to stick to my diet hardcore "tomorrow." I don't know where my drive went, but I need to find it again. I hate going in public and feeling like people are looking at me thinking how disgusting I look. So diet, now!
Hi all how are we doing weight wise...I actually lost 5 lbs...I usually lose it then find it ...so far it has stayed off....crossing my fingers I do not find it and then some with all the treats over the holidays.
I know I don't post much on this forum, but I saw this thread and it peaked my interest.
I'm a HUGE advocate for Weight Watchers. I joined WW in April of 2009 and I've lost a total of 77.4 so far (I'm only 3 pounds from my goal weight now). If anyone has questions about the program or have even been curious about joining let me know! I swear by it.
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