Chiari Malformation Community
Wednesday's Weight Inn ~~~~ 2013
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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Wednesday's Weight Inn ~~~~ 2013

Hi All...lets get started...first who all wants to participate?

U do not need to tell us ur weight or how much u want to lose,u may just want to weight in on current events in the news or on a topic Chiari related.....  

We can also bond over weight loss trials and tribulations as well.....recipes will still be a thread on Thursdays.....

It seems no one was into the exercises for those with limitations.....but if neone is...u can post here about that too....
35 Comments Post a Comment
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620923_tn?1366319552

  Hi all...I guess we have a few newbies that do not know about our daily threads on the weekdays...ne questions...please ask
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Avatar_m_tn
I've actually lost more weight than I wanted to. With my swallowing issues eating is such a chore. :( Can't afford to lose anymore.
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4689100_tn?1358801534
Hi Selma,
I am interested in the weight in. I am and have always been weight countious,lol. I am not a big person, nor do I wish to be, but I find it very hard to excercise, I have tried various things and they all seem to be too much for me. They all make my head feel as if it will exzplode, i get dizzy, etc. But I can walk!!! LOL, wish could do more than that, do you have any suggestions or is there something you have found you can tolerate that may work for some of the rest of us? And do you also struggle with the same things as far as the exercise goes?
Thanks for your input.
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Avatar_f_tn
I've been shedding weight since surgery (6 mo.).  I feel like my metabolism has returned more to normal, but my stamina has not!  So I feel ambitious & restless, but if I do too much, then I feel sick.

I intend to find the discipline to practice qigong or yoga.  I feel like I have to hustle to fit it into my day, andI'm not ready to move fast, especially when I don't sleep well.

Have you tried an arthritis-type exercise class in a pool?   It was too slow for me--I got cold--but dressing & undressing, showering & showering, driving & driving was exhausting.
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620923_tn?1366319552

  I do have some exercises for those interested  given to me by a Dr for those with limitations...Chiari does limit what we can do,, and I explained to him the situation and gave me exercises he felt we should be able to do.....

I will start posting them here for those that want to follow and for those losing weight and not doing much to do so, except for those not eating right....try Boost or Insure to get the protein u need ...but talk to ur Dr first.

And if u r eating and losing look at the possibility of a thyroid issue, make sure they do an ultra sound of ur throat and do lab work for an auto immune thyroid which inculdes free T3 and free T4 TPO antibodies and TSH.
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1755089_tn?1333936375
I need to lose weight!!! But it doesn't work!!!
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620923_tn?1366319552

  Same here....have u had ur thyroid tested...and not just the TSH but for an auto immune thyroid issue?
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Avatar_m_tn
I'm interested in knowing what exercises are acceptable. :)
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620923_tn?1366319552
  
Exercise with limitations-Exercises to gain balance, motor coordination and strength -


  From a seated position: Raise opposite arm and leg to the side. Make sure you don't do any overhead movements. Do it five times each.


  From a standing position and holding to a wall or a chair see if you can raise one foot from the floor and hold it for five seconds then change legs.

  There are many ways  we can  gain balance, motor coordination and strength but it is important that we set up a base.

Let me know how these work : )

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1755089_tn?1333936375
No I did't got my thyroid check, my doctor says it useless since I don't have all the signs like brittle hair and nails, ect...
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620923_tn?1366319552

  Are they symptoms of a reg thyroid condition or an auto immune thyroid condition?

Fatigue
Depression
Modest weight gain
Cold intolerance
Excessive sleepiness
Dry, coarse hair
Constipation
Dry skin
Muscle cramps
Increased cholesterol levels
Decreased concentration
Vague aches and pains
Swelling of the legs

Keep in mind not everyone has all the symptoms so u do not have to have the hair and nail issues in order to have this....
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1755089_tn?1333936375
Thanks I'll bring that list next time with highlight on my symptomes. Mabey she'll get me test then!
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620923_tn?1366319552

Keep in mind this is an autoimmue condition so they can not test just the TSH, in addition they need to look at the free T3, free T4 and TPO antibodies.

A ultra sound of the thyroid is helpful in seeing if u have nodules too, bcuz with Hashimoto's thyroiditis u can go from hyper to hypo to normal levels even tho u have the condition.
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Avatar_f_tn
Before getting a blood test try this tried a true method.
Take your temperature under your arm for 5 days just as you wake-up, move as little as possible.
Make sure you use a glass thermometer, NOT digital.
If you're pre-menopausal start taking your temp. on the second day of your period.
Normal basal temp. is 97.8 to 98.2.  If it's below 97.6 you probably need treatment.

I know exactly where you're coming from....I was on nutri-system for 6 weeks lost 6 pounds then started gaining weight!
I researched leangains and decided to try it (now being hyped as the 8 hour diet). Don't buy the book though. Just go to leangains.com for the basics.
I have lost 4 pounds in 11 days.  That hasn't happened since I was 19yo! I was the kinda person who religiously ate breakfast every morning and would be starving by 10am or before.  Feeling so hungry I could kill someone! I figured what the hell, I'll give it a go. Sure glad I did.  I get hungry in the morning but not like I did when I ate breakfast.
I eat a lot less throughout the day because my stomach has shrunk. I do eat sweets and I do drink beer...AND I still lost weight.
I have my first meal at 11am and stop eating by 6:30pm. With my Chiari and herniated c-spine disc I walk about a mile 3 times a week. So, it sure isn't the exercise!

Good Luck!
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620923_tn?1366319552

wondering if neone has tried the exercise I posted and how many u r able to do? Neone ready for the next exercise or do u want me to wait till next week?
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620923_tn?1366319552

  Still wondering ????
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620923_tn?1366319552

  helloooooooooooo?
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Avatar_n_tn
I would like to know what diet you did. I have lost almost a 100lbs since last january. I know the way i did it was not healty. So i need something more healthy. I hope i don't gain anything back because of not being able to get around form the surgery. what exercise can i do after surgery.

Thanks for all your advice
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620923_tn?1366319552

  This thread was talking about exercises for those with limitations and we share recipes...

I have not done ne diets, but do try to eat healthy....I also found that having the right suppliments helps too as an EDSer my body does not properly absorb the vitamins and minerals and can affect my  Metabolism .

Just getting that sorted has helped me lose some weight, and I am trying to bcome more active...lol...
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1755089_tn?1333936375
Well I did the exercises. I'm trying to eat healty. But yesterday I had a binge eating sesion my first one in more then trhee years. I feel realy bad about it. I'll need to call my nutritioniste and be more carefull with my coping mecanisme.
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620923_tn?1366319552

  Next time u feel the need to eat like that pop on here and chat : )

I am  glad u did the exercises...how many can u do?

Once u get the amount up and want to add another exercise let me know and I will add one.
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620923_tn?1366319552

  Neone else doing the exercises...or ready for the next set?
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4816750_tn?1368808270
Well I will say I have goined weitght, Since surgery and was before.  When surgery I lost over 25 lbs since wasn't able to eat for 6 weeks.  Now it has been 8 months and I have gained weight.  I weigh more now than I did before surgery.  Before I weighed 205 and now I weigh 219.  I had to buy new pants cause the 34 waist that I have wored for 20 years don't fit.  So I am back in the gym again got lazy and quit going.  I do mostly walking and using the machines with only the limits I can do.  So no straining.  So that is my story and sticking to it
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620923_tn?1366319552

  Good for u that u r able to do those and have access to a gym....if they have a recumbent bike that is something that is good for us to do....

For those that do not have a gym available to them or equipment I will post exercises and we can add to them as we go....

No one seem to take me up on them.
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620923_tn?1366319552

  Ne one else looking for the exercises?

I have been doing them just to stretch and to keep active.....and am building up to using 2 1/2lb weights.....I hope that does not cause an issue....I know 2lbs does not sound like much, but I also know it can feel like a lot more when u do not usually use them....we shall see...
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620923_tn?1366319552

  ne one?
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2063048_tn?1363787243
Hi, Selma! I went for a regular check up this week and I have gained weight since surgery. I'm just not able to do much. I try to do stretches and walk with my kids, but I have to be careful because I get dizzy and my left leg goes numb. I really want to build my strength and stamina back up, so I'm going to I've those exercises you posted a try! I do the range of motion exercises for my neck, but even that makes me all wonky!

Thanks for doing this!
Annie
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620923_tn?1366319552

  Even tho u may feel wonky u have to do the neck exercises to prevent the muscles from getting tight and help prevent scar tissue from forming, mayb u r doing too much or incorrectly???

Make sure u use heat b4 u do the exercises to help relax the muscles...and heat after so they stay relaxed.

Do u have a bulging disk in ur cervical spine?

No worries,...start slow and add only once u do not feel after effects of the exercises....if u need me to add more let me know  : )
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620923_tn?1366319552

  Hi all how are we doing with exercises and trying to lose weight?
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620923_tn?1366319552

  Hi all how r we doing with exercises and losing weight?
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Avatar_f_tn
Well, I have been doing your exercises for my neck that you posted, and just like Annie said I get wonky doing them!  I am still trying though!  I just went for a short walk, so that was nice too. :)  I had joined WW online a month ago, that has helped.
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620923_tn?1366319552

  Are u using heat b4 and after the exercises?

And do not push or strain...these should be done slowly and build over time....and make sure u r only doing the ones I mention below the pic of the chart.....

Glad WW is helpful.....keep me posted  : )
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Avatar_f_tn
I have been doing them after I shower, does that count?  Definitely not after though.  Does that help?  Thanks for the tips!
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620923_tn?1366319552

  The thing is u may get the area warm while in the shower, but I think having the heat on it directly is better, and u really need it afterward as well...it helps prevent the muscles from getting tight...mayb that is y u feel wonky after doing them?

Plus the heat of a shower is heating all of u, and if u have an underlying POTS issue this can cause u to feel wonky after the shower too....so be careful.
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620923_tn?1366319552

  Hi all how are we doing this week with weight and exercise?
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