I am interested in the weight in. I am and have always been weight countious,lol. I am not a big person, nor do I wish to be, but I find it very hard to excercise, I have tried various things and they all seem to be too much for me. They all make my head feel as if it will exzplode, i get dizzy, etc. But I can walk!!! LOL, wish could do more than that, do you have any suggestions or is there something you have found you can tolerate that may work for some of the rest of us? And do you also struggle with the same things as far as the exercise goes?
Thanks for your input.
I do have some exercises for those interested given to me by a Dr for those with limitations...Chiari does limit what we can do,, and I explained to him the situation and gave me exercises he felt we should be able to do.....
I will start posting them here for those that want to follow and for those losing weight and not doing much to do so, except for those not eating right....try Boost or Insure to get the protein u need ...but talk to ur Dr first.
And if u r eating and losing look at the possibility of a thyroid issue, make sure they do an ultra sound of ur throat and do lab work for an auto immune thyroid which inculdes free T3 and free T4 TPO antibodies and TSH.
Before getting a blood test try this tried a true method.
Take your temperature under your arm for 5 days just as you wake-up, move as little as possible.
Make sure you use a glass thermometer, NOT digital.
If you're pre-menopausal start taking your temp. on the second day of your period.
Normal basal temp. is 97.8 to 98.2. If it's below 97.6 you probably need treatment.
I know exactly where you're coming from....I was on nutri-system for 6 weeks lost 6 pounds then started gaining weight!
I researched leangains and decided to try it (now being hyped as the 8 hour diet). Don't buy the book though. Just go to leangains.com for the basics.
I have lost 4 pounds in 11 days. That hasn't happened since I was 19yo! I was the kinda person who religiously ate breakfast every morning and would be starving by 10am or before. Feeling so hungry I could kill someone! I figured what the hell, I'll give it a go. Sure glad I did. I get hungry in the morning but not like I did when I ate breakfast.
I eat a lot less throughout the day because my stomach has shrunk. I do eat sweets and I do drink beer...AND I still lost weight.
I have my first meal at 11am and stop eating by 6:30pm. With my Chiari and herniated c-spine disc I walk about a mile 3 times a week. So, it sure isn't the exercise!
I would like to know what diet you did. I have lost almost a 100lbs since last january. I know the way i did it was not healty. So i need something more healthy. I hope i don't gain anything back because of not being able to get around form the surgery. what exercise can i do after surgery.
This thread was talking about exercises for those with limitations and we share recipes...
I have not done ne diets, but do try to eat healthy....I also found that having the right suppliments helps too as an EDSer my body does not properly absorb the vitamins and minerals and can affect my Metabolism .
Just getting that sorted has helped me lose some weight, and I am trying to bcome more active...lol...
Well I did the exercises. I'm trying to eat healty. But yesterday I had a binge eating sesion my first one in more then trhee years. I feel realy bad about it. I'll need to call my nutritioniste and be more carefull with my coping mecanisme.
Well I will say I have goined weitght, Since surgery and was before. When surgery I lost over 25 lbs since wasn't able to eat for 6 weeks. Now it has been 8 months and I have gained weight. I weigh more now than I did before surgery. Before I weighed 205 and now I weigh 219. I had to buy new pants cause the 34 waist that I have wored for 20 years don't fit. So I am back in the gym again got lazy and quit going. I do mostly walking and using the machines with only the limits I can do. So no straining. So that is my story and sticking to it
I have been doing them just to stretch and to keep active.....and am building up to using 2 1/2lb weights.....I hope that does not cause an issue....I know 2lbs does not sound like much, but I also know it can feel like a lot more when u do not usually use them....we shall see...
Hi, Selma! I went for a regular check up this week and I have gained weight since surgery. I'm just not able to do much. I try to do stretches and walk with my kids, but I have to be careful because I get dizzy and my left leg goes numb. I really want to build my strength and stamina back up, so I'm going to I've those exercises you posted a try! I do the range of motion exercises for my neck, but even that makes me all wonky!
Well, I have been doing your exercises for my neck that you posted, and just like Annie said I get wonky doing them! I am still trying though! I just went for a short walk, so that was nice too. :) I had joined WW online a month ago, that has helped.
The thing is u may get the area warm while in the shower, but I think having the heat on it directly is better, and u really need it afterward as well...it helps prevent the muscles from getting tight...mayb that is y u feel wonky after doing them?
Plus the heat of a shower is heating all of u, and if u have an underlying POTS issue this can cause u to feel wonky after the shower too....so be careful.
Gabapentin did more then make me gain weight...ugh...I did not like it...
And I keep getting larger....sigh, I am eating less... and when I try to go about things "normally" I have these awful spasms....sigh....it is a vicious circle....but I have tried the exercises....I need a place to get out and walk....
I know it is Friday, but by time Wednesday rolls around again, I'll forget to post! :P
On my quest to gain weight back, I've not only succeeded, but I gained more than required! All I did was go on a cruise! Ice cream comes out of every wall, and the dinners are 3 course! I need new clothes hahaha but I will make all my doctors happy! And I was told that I actually look healthy!!
I am pretty limited to just walking. Anything else causes flare-ups of my cysts and neck pain. My legs are pretty weak due to nerve damage so I walk short distances and then rest. If you have any suggestions of something else I can do, I am willing to try it.
I'm new to medhelp and I've recently gone for a chiari decompression. I am completely mobile and balanced, experiencing only a small amount of difficulty moving my head towards my chest (but I've heard that that will ease up in time) . I'm keen to get active, however I'm not sure what type of exercises are safe?
May I ask how recent was ur surgery? It is typical to feel great and that u can do a lot shortly after surgery, but as time goes on some of the symptoms return as the nerves heal, so u do not want to do things too soon just bcuz u feel better u should take it slowly.
I do have a exercise to start with posted above I will repost it below, and suggest u start with this, since u have no issues walking u would want to add some walking, but bot up steep hills or outside in extreme heat.
Please let me know when u are able to do these and add to them and I will add more to this list.
Oh and I hope u r doing exercises for ur neck to prevent the muscles from getting stiff or scar tissue from forming.
My surgery was less than a month ago! on the 27th of June. I've been having quite a speedy recovery, my doctor and physical therapist were very impressed with my progression after the surgery. I have been taking it quite easy, just walking and doing some neck stretches.
I did have a very unique case, so much that the doctor's didn't know whether to operate or not! I suffered from headaches, very inconsistent ones and I had a large syringomyelia with no other symptons. I've been quite athletic and active for most of my life and even played sport on a national level. So being diagnosed earlier this year was a very big shock as none of my functions were compromised as one would have expected them to have been, especially with a syrinx of 12mm.
Having done the decompression surgery, I am well aware that I may never play full contact sport again, so I was just wondering what are on the cards for someone like me?
These exercises are great:) thank you for sharing!
Cards, no idea....we all are so different and so is the way we rebound after this surgery, much has to do with our activity level pre op and if we have ne other related conditions.....
U may do better then the average person, but I have to warn u to go slow....so many rush back to normal activities post op bcuz they feel so much better then have a set back....so as my avitar shows a turtle...slow and steady ,. : )
Haven't done any yet. Just went to a TMJ doctor, as requested by my pain doctor, and I ended up getting 13 shots on the right side of my face, cheek, behind my ear, lower scalp and shoulder. Of course he said I have TMJ and $5,600.00 after todays visit, I left so frustrated. My face is now severely bruised and painful. So I wonder if they are just looking for things because of money or do I believe I have this too?
Have they looked to rule out EDS? TMJD is something associated with EDS and EDS is related to Chiari......we go round and round in circles....sigh.
I had someone suggest that I also had it, my dentist checked and said I didn't. but I could try a mouth guard u get in a sporting goods store...u shape it to the size of ur mouth with hot water.....and these are less $$ then the ones the Drs offer for TMJD.
Sorry u r in so much pain.....try the mouth guard....see if it helps and ask to be checked for EDS.
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