Weird Vision and Daze Feeling 24/7

Hello, I am 17 yrs old almost 18, and I have had this problem for about 4 yrs now or more. I was diagnosed with a Chiari Malformation that was about 13mm in 2007 which they discovered in an MRI. I also have Fibromayliga. My vision problem first started off when my vision slowly became blurry with blind spots. Now I see strange colors in my vision 24/7 with my eyes opened or closed. I also have a very strange feeling in my head 24/7 like I not even here. I also keep getting my speech messed up when I talk. The doctors say that it is just stress and act as if I am making it up and crazy. I can't believe it! I know how I feel, and it's miscible. I am able to get good grades at school, but it is really hard for me to focus due to the weird colors in my vision that obstructs my sight 24/7 and the daze feeling in which I feel as if I am dumb. I really don't know how to explain it, it's like I'm not here or as if I'm dreaming. My short-term memory is horrible. I did fall out of the bathtub and slammed my head into the wall about 3 yrs ago and I have wreaked my bicycle and flew over the handle bars when I was about 12 or 13 yrs old. When I slammed my head into the wall 3 yrs ago, I ended up yawning nonstop. Both times, I have jarred my body/head really bad.  Could that have caused something wrong? My doctors said as if it wouldn't have no effect, but I don't know what to believe. Please if anyone has any information on what may be wrong with me, PLEASE DON'T HESITATE TO RESPOND! I can't stand this feeling anymore!!!!!!!

Thanks!!! Any information is greatly appreciated!!!!  

[selmaS]

Hi...glad u came over to the chiari community.Please read the poem at the top of this page as well as the welcome...there is plenty of info that may help answer some of ur questions.

Let us know what area u live in if u r need of  finding a chiari specialist.

I also feel becuz of ur age u may want to have ur parents get involved with this ...u will need their support.

"selma"

[Please_Help950]

Thank You for your concern, it is greatly appreciated. I did go to a chiari specialist in 2007 after it was found in my MRI. My doctor, Dr. Winer, told me that my chiari was 13mm and he ordered that I have surgery done. I did have the operation done on June 13, 2007 and it only helped the severe headaches that I got when I laughed. I still have the vision problems and dazed feeling though.

I don't know if anyone has this problem:

Does anyone else see weird colors in front of their vision 24/7?

It is really worrying me and it is accompanied by a strange fog-like daze. It started off before I started to get the severe headaches. I began to notice it when my vision began to become blurry with blind spots and now I see strange flickering colors in my vision that obscures my entire field of sight. I can see it worse at night and I can still see it with my eyes closed. Could the chiari that I have had still be causing this, or is there a possibility of something worse?

Please if anyone has any idea of what might be wrong with me, Please don't hesitate to respond!!! Any Information is greatly appreciated!!!! Thanks!!!

[selmaS]

Hi...I see u r also from PA....what area?

It sounds like migraines with auras.....I am not sure tho...Let Shane99 give some input he may have sosme idesa...I will look into what could be going on.

In the meantime please read thru the threads here....there are alot of members with similar feelings of frustration.

Hang in there : )

"selma"

[Please_Help950]

I'm from Wrightsville, PA.

[selmaS]

May I ask, where is that?Eastern , central or western PA?

[Please_Help950]

Oh I'm sorry, It's located in Eastern PA near the Susquehanna River.

[selmaS]

Oh....so is Allentown!!....in Eastern PA....lol...it is a big state.

I am sure we r still quite a distancs apart. But it is nice to have someone so close.