What to do next

[tattie197635]

Well, another thing added to my list, I have been trying to get disablity since my surgery in 2009, well I was denied last month and now my lawyers told me that they are closing my case and I need to start all over again, and bring new medical records.

I have been denied 3 times and now it's at the level of going to the Appeals counsel, they informed that No lawyer will handle a case that has reached the Appeals counsel...so all the back pay is thrown out the window. I am at a lost of words right about now, and just needed some encouraging words from my fellow Chiarians on this situation.

[tattie197635]

Thank you so much for your encouraging words, at least I know that I'm not alone now. Sometimes when we go through things we feel like we're the only ones dealing with this.

Today I got a new lawyer and they are going to start the process over for me. I'm going to make my voice heard this time, and make sure that docs understand what I'm going though. I wish you the best also and we all just have to keep the faith even through the most difficult times. I'm sending Hugs back to you...Tatiana

[Sexybare]

I was denied disability also. My lawyer appealed and I have a hearing for feb 8th. I'm terrified of being denied again. The reason we are denied is because not enough people know what we have nor go thru. People with lesser health issues get it but we can't?! Pisse me off. Alcoholics can get disaability, people with fibromyalgia can but not us chiarians. Its just not fair....I wish u the best of luck. I'm sorry, a lot of us are fighting for it and losing also sweetie. Having little or no income is horrible, I'm in the same boat, hugs,Dana

[selmaS]

  I know how u feel as I do not have an income and it is hard....but I refused to try to get SSID as I know how hard it is and I want to get another dx documented b4 I try...hoping that will help the process.

Hang in there ((hugs))

[tattie197635]

I guess I'm going to have to start "All Over" this really ***** and I guess, I was denied through out this is because the doctors I seen where not Chiari Specialist and did not have a clue about Chiari.

I so now I'm going to start the process all over again becuuse, I know that I can't work, on top of it all I'm overly depressed right now, wanting to just throw my hands in the air and saying screw all this. But in my heart I know I can't!

Maybe God will see me through the second time around, I'm just having the damnest time getting to a specialist, because of all this crap the insurance takes you through, there is no one in my State Indiana that fully knows about CM and I will be just continuing to waist my time with these nuckle head docs.....Just feeling lost right now....but thanks for all the help that you offer Selma.

[selmaS]

  Hi...I wish I knew how to help u, u have lawyers that is one thing that is supposed to help....at this point I only tried for my LTD and was denied and it would be a federal case to fight and cost more to fight then I would get and no lawyer is even experienced with this as it is a newer law that causes it to fall under the Federal law guidelines....ERISA....ugh

Did u look at our thread links to winning SS disability?