when your primary care doctor can't write up paperwork for you because they don't have your files because you kept changing doctors. (recently happened to me)
You know you have Chiari when you feel like you are the hot potato being passed from one doctor to the next as they have no clue whats going on.
Or.. When you have been through 90 pills of 600 mgibuprofen in less then two weeks.
Or.. When the doctor just tells you that you have over exercised your brain causing it to outgrow your skull.
Or.. My personal favorite is when I could no longer say my ABCs backwards.( please don't ask why I even learned how to say them backwards just something I wanted to do).
Hey stranger !! How are u doing?
You fail the field sobriety test cold stone sober.
You know that you have Chiari when you finish a large bottle of Excedrin in about a week!!!!!
You know you have Chiari when:
You go to your Primary physicaian and he says " I don't know why you still have pain and muscle weakness go back to your physcal medicine dr". SO you do and she says go back to your primary physician, SO you do and he says She can handle it better SO I say pull your head out! SHe said to go to you and so did my NL my NS and the ER dr and my physical therapist! Then he says here try this! I said ok and by the way I am tired of being treated like a hot potato!!! Then his face goes white and he breaks down telling me he looked at my file all day the day before my appointment becuase I was on the schedule and he still couldnt figure something out.... UGH!!
When people ask you why you don't feel well and the answer always takes more than 5 minutes to explain :)
The saggy brain is a great excuse for messing up, and gets a good laugh from people who know me!
When I found out I had Chairi, I tell people that I'm so smart, my brain doesn't fit in my skull. LOL
You know you have chiari when....
someone mentions 'tonsils' and your immediate thought is not the ones in our throat ;-)
when you've gone to Dr.'s for years, have various testing and meds,then they tell you "it's all in your head" and you find out it really is in your head!!!
When you wake up in the morning and say "Oh, this again..."
Just wanted to say hello to you all again. Thank's again for all the good information for the Dr. Reading these messages from you gives me something to look forward to when I come home in the evening. It's is always so nice to talk to all of you.
May God shine on your day. '
u guys r so funny! U brightened my day a little!
Molly
You know you have Chiari when.......
Your office comes in and asks: "Have you had your pain meds yet, or should I come back later to ask you about....?"
Your children say "But Mommy, you are always beautiful" AFTER you just puked all over the lawn before taking them to school. And you are trying to put on some lipgloss just to FEEL better. Just happened this morning. Sadly this Didn't faze them at all :(
You are dragging around your left arm and left leg. Someone asks you what is wrong with "your wheel" and you respond with "Oh, I got my front tire fixed last week." He says, "No, your leg..." And you don't get it, but laugh anyway. Twenty eight minutes later you are laughing. This is after you realized how scary it was that your tire was almost burst by the alligator strips on the highway...
You are flighty and like that you now have an excuse. ;)
Hey Molly...how about this...My DD asked for my sister's address and I gave my own...lol....they both start with a 5...is that an excuse?
u no u have chiari when the common cold keepsu off ur feet for two weeks! Or when u can't remember how to spell the word remember LOL ( put ur own word in there. I forget simple spellings all the time!)
Molly
Girl we must have come from the same pod!!!! JUST did that earlier this week. Asked my BF how that happened. He said "Well you just kind of tipped it back a little early. Or your mouth wasn't ready for it...." NICE!
you pick up your cup to take a drink and realize that half of it is spilled down the front of you......awesome.
U feel smarter than ur dr and u have cognitive issues...scary too : )
You have developed a fundamental mistrust for anyone in the medical profession that isn't a Chiari Specialist!
You might have EDS if you can bend in unnatural ways (without stretching first) and it doesn't cause you pain. Hey maybe i should become a contortionist LOL!!!
.... when you have had no alcohol, but You still couldn't pass a sobriety field test from a cop! Lol