So I went to see Dr. Heffez at the Wisconsin Chiari Institute yesterday and I also met with a neurologist there, Dr. Connors. Dr. Heffez kinda left the ball in my court as far as surgical options go -- I don't think it is quite necessary yet, plus I am trying to finish grad school right now anyways.
Anyways, Dr. Connors made an interesting point when I was talking with him. My vertigo is not triggered in the same way as most chiari patients and he is not convinced that we're getting the whole story here. I've spent quite a bit of time poking around online and looking at my MRI images again today. A while back, one of my professors told me about his mother who had an acoustic neuroma (slow growing benign tumor on the vestibulocochlear nerve) and it kind of raised a red flag for me... After looking through my images and thinking about how my symptoms coincide with that I'm wondering if I should call Dr. Heffez and Dr. Connors back to see if they will look into that... Maybe they overlooked something because they weren't looking for that? Or maybe I'm just looking too hard to find an answer...
On my MRI images I found what looks like a small lit up area on the left side near my cerebellum near where acoustic neuromas usually occur... Coincidentally, my vertigo is triggered most often when I tilt my head to the left rather than looking up/down. I also get ringing in my left ear... but I've had a few hearing tests and all have come back normal.
Maybe I'm just thinking too much into things?
Does anyone know anything about acoustic neuromas?
I'm also going to talk with one of the neurosurgeons that I work with in my brain tumor research lab at school... maybe he'll take a look at my images too.
Hi, I am not sure that is something the Chiari specialists would be good with and ur other choice may be better as they look to conditions like that daily where the Chiari specialist focuses on Chiari and related issues, I do not think this is related to Chiari.
I haven't had any hearing loss... My last hearing test was in August and my ENT said everything looked normal. Although, when I talk on the phone I prefer talking with the phone on my right side over the left because I generally feel that I can hear the person speaking better.
I started taking a low dose of diazepam today for my vertigo and so far, so good. I haven't gotten dizzy at all today. Things were really rough for a few days for my because I ran out of topomax too and didn't have any refills left between doctor visits. But now I'm back on that today and my headaches feel better too.
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