cape effect?

[drewlevas]

What is the cap effect? It says that it's pain where a cape would be, accompained by stifness. Does it affect the hands and fingers to?

[Rylanesmom]

I have never heard the term cape effect used but I so have it! I learned something new today.

[Sexybare]

I have all of these symptoms post op also. I never had the appropriate testing before surgery. Not of the spine. So im winderin, could i have something else goin on like a syrinx or something? I go to my pcp in feb. Gonna ask for full spine mri.  I just dont get why my ns never did further tests. He was quick to schedule my surgery tho

[drewlevas]

Thank you selma taking it in note to ask my doc about RA and EDS.

[selmaS]

  Well I was going crazy trying to locate the other convo on the cape affect.....it is in this thread -http://www.medhelp.org/posts/Chiari-Malformation/You-know-u-have-chiari-when/show/1338280#post_7607625

The question was by DAINO103.

[selmaS]

  Hi...no crowding where?...Is this Dr a chiari specialist?..and have u been checked for a syrinx?

  "selma"

[strridge]

I have the pin sticking and burning feelings all over my body.  I have a Chiari I Malformation, but the neurosurgeon says he doesn't think it's causing these problems.  It is only the right cerebral tonsil and it is hanging down 12mm below the line.  He said it doesn't appear to be touching anything and it looks like (per my myelogram) there is no crowding.

[selmaS]

  Many with Chiari also have auto immune issues including RA...or connective tissue disorders like Ehlers-Danlos Syndrome...which can affect the hands and fingers...more so when it gets colder maker them stiffer and more diff to work with....

All joints hurt with EDS....so, it can be several diff things, so do let ur Dr know about all ur aches so they check u for these related conditions and treat u for them as well as chiari.

   "selma"

[drewlevas]

I said NR I was meaning NL !!! Chiarian brain at work.   :)

[drewlevas]

My neigbourg that as MS told me that she has the same pain then me and that her NR called it the cap effect. I have Chiari and Syrinx.

I was also wondering if when the hands and fingers are as well stiff and somehow painfull it was part of this cape effect to?

For the last two day I might as well have plastic finger! It feels like I'm wearing thick stiff gloves! With a lot of pain in the neck and shoulder region.

I thank G for this forum, and all the helpfull people on it.

[selmaS]

  WOW, this same question on the same day....ummm it is pain in the area a cape would drape on...neck, shoulders...etc....stiff neck.

Many with a syrinx will also have this pain as well as those with MS....so it is not a chiari only symptom.